1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
California 2014: IACFS/ME Day One: Translating Science into Clinical Care: 20 March 2014
The location has now moved to San Francisco, for the first day of the IACFS/ME 11th biennial event, and another exciting round of presentations to an even larger audience. Searcher was again present, with her Press Pass, and along with some very kind help, from Hope, managed to...
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Phoenix Rising Website Information Pages

Discussion in 'Advocacy Projects' started by Cort, Dec 21, 2009.

  1. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    The Phoenix Rising was always envisioned as a community resource. Several sections on the website have then authored by other people and myself; Rich Van K's glutathione/methylation pages Victoria's section on Aromatherapy. There is room for many more.

    What I am looking for is something like this - say someone does a Gut section:

    • A short general overview of the gut
    • An overview of ME/CFS professionals take on the gut situation in CFS (check out interviews and talks by DeMeirleir, Maes, Cheney, etc.)
    • An overview of the findings from research studies on the gut in CFS
    • The different gut protocols - treatments, diet, probiotics, etc.
    • Ongoing research studies, if any, on the gut
    • A Gut Resource section.

    Guidelines
    • Try to be objective (no champions for a cause! - this is a big group of people - no one thing will work for everyone)
    • Be sure to differentiate opinion from solid (ie statistically proved) evidence. Anecdotal evidence is fine but please state that.
    • Be conservative in your conclusions
    • Point out opposing viewpoints
    • Always remember subsets are present
    • Provide references
  2. caledonia

    caledonia

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    Cincinnati, OH, USA
    Cort, I wonder if this could be done like wikipedia, with many authors contributing. It seems like such a big project for one person.
  3. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    Sure. Its doesn't have to be all done at once either. You can chip away at it.
  4. Mark

    Mark Acting CEO

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    Sofa, UK
    I agree with Caledonia, it would be nice to have our own wiki to collaborate on a variety of shared projects and documents; in particular I thought of it for managing info like that referred to here. Careful thought needed, though, about how to manage access to it, and how to deal with conflicts, how to efficiently agree on changes.

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