1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS and Beating the Clock
For Jody Smith, the ticking of a clock was enough at one time to chase her back to her bed. But with the passage of time, she has been able to reclaim her living room ...
Discuss the article on the Forums.

Phoenix Rising Video Library

Discussion in 'Action Alerts and Advocacy' started by Mark, Jul 4, 2010.

  1. Mark

    Mark Acting CEO

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    SORRY FOLKS - I'VE TOO MUCH WORK ON TO KEEP THIS THREAD UP TO DATE. IF SOMEBODY WANTS TO TAKE THE JOB ON, LET ME KNOW...MEANWHILE, PLEASE NOTE THAT THERE ARE SOME LINKS TO MORE VIDEOS AT THE BOTTOM OF THE THREAD.



    INDEX

    Awareness Videos on ME,CFS,XMRV, WPI

    Informative Videos by forum members and other patients, set to music

    Doctors on XMRV
    The latest word from top doctors and researchers

    The Whittemore-Peterson Institute
    Videos from and about the WPI

    Patients and Patient Groups
    Patients tell it like it is

    Psychiatry and ME/CFS
    Psychiatrists on ME/CFS, Patients on Psychiatrists

    News Reports
    TV news reports


    LATEST ADDITIONS !


    XMRV: Requiem for a Spectre

    [video=youtube;P_JUiMjKxzw]http://www.youtube.com/watch?v=P_JUiMjKxzw&feature=channel[/video]


    Full XMRV blood tests available to UK & Europe

    [video=youtube;8aTbaIt1iug]http://www.youtube.com/watch?v=8aTbaIt1iug&feature=channel[/video]


    1st International Workshop on XMRV - Q&A Wrap-up Session

    [video=youtube;0r7M_ZEjQ-s]http://www.youtube.com/watch?v=0r7M_ZEjQ-s[/video]


    All About M.E.

    McCarrick Films:
    "A documentary about M.E sufferer Laura Fursland. A promising young music student , Laura has been living with M.E (Myalgic Encephlomyelitis) for the last two years and this film intends to highlight the problems and issues that arise with this often misunderstood condition.
    With interviews from Laura's mother Jeanette and Dr Charles Shepherd (Chief Medical Advisor to the M.E Association) the film is an emotional and gripping story about one girls struggle to lead a normal life with an illness that few understand."

    Part 1:
    [video=youtube;dWp5W7kHEVo]http://www.youtube.com/watch?v=dWp5W7kHEVo&NR=1&feature=related[/video]

    Part 2:
    [video=youtube;-XhCekXdTBY]http://www.youtube.com/watch?v=-XhCekXdTBY&NR=1&feature=related[/video]


    The CDC vs CFS/ME....or How NOT To Find A Retrovirus

    [video=youtube;M6QHLMi_mgY]http://www.youtube.com/watch?v=M6QHLMi_mgY&feature=channel[/video]



    COMING SOON !
    THE FEATURE DOCUMENTARY
    "WHAT ABOUT ME?"


    US and UK TRAILERS:
    http://whataboutme.biz/


    Facebook: http://www.facebook.com/pages/WHAT-ABOUT-ME/105992479431834?ref=ts
    Double D Productions: www.digitaldocumentaries.co.uk, http://vimeo.com/user3481807
    Marin Finerty (Art Direction, motion graphics): http://vimeo.com/marinfinerty

    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?3859-What-about-ME-documentary

    YouTube trailer:
    [video=youtube;rUBsz4BH6G4]http://www.youtube.com/watch?v=rUBsz4BH6G4&feature=related[/video]
  2. Mark

    Mark Acting CEO

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    Awareness Videos on ME, CFS, XMRV, WPI

    ME/CFS PHOENIX RISING VIDEO

    [video=youtube;00BZCjVK_6I]http://www.youtube.com/watch?v=00BZCjVK_6I&feature=channel[/video]
    Forum Thread:
    http://www.forums.aboutmecfs.org/content.php?111-Phoenix-Rising-YouTube-Video-Thread
    Forum Article:
    http://www.forums.aboutmecfs.org/showthread.php?4594-Article-Phoenix-Rising-YouTube-Video-Thread
    Forum Press Release:
    http://www.forums.aboutmecfs.org/showthread.php?4859-Phoenix-Rising-Video-press-release
    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?2478-Phoenix-Rising-YouTube-Video-Thread

    XMRV: Requiem for a Spectre

    [video=youtube;P_JUiMjKxzw]http://www.youtube.com/watch?v=P_JUiMjKxzw&feature=channel[/video]
    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?8010-Amazing-Video!!!-Must-See!!!

    Full XMRV blood tests available to UK & Europe

    [video=youtube;8aTbaIt1iug]http://www.youtube.com/watch?v=8aTbaIt1iug&feature=channel[/video]
    Forum Discussion:
    http://www.forums.aboutmecfs.org/sh...btain-XMRV-testing-in-the-UK-simply-explained

    XMRV in CFS/ME

    [video=youtube;3XOor24YYmw]http://www.youtube.com/watch?v=3XOor24YYmw&feature=channel[/video]
    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?5885-XMRV-YouTube-Video


    IS ME/CFS a type of AIDS?

    [video=youtube;rpgYTsCtcYw]http://www.youtube.com/watch?v=rpgYTsCtcYw&feature=channel[/video]


    XMRV (The Retrovirus)

    [video=youtube;HY5Ph_9pL5g]http://www.youtube.com/watch?v=HY5Ph_9pL5g&feature=related[/video]
    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?6129-XMRV-you-tube-video-asking-for-release-of-FDA-NIH-study


    The XMRV Epidemic - Are You Next?

    [video=youtube;wVsnOFRcQAE]http://www.youtube.com/watch?v=wVsnOFRcQAE&feature=channel[/video]
    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?6618-XMRV-Awareness-Video


    Third positive MULV study: Cancer link to XMRV infection & LV Diastolic Dysfunction in CFS

    [video=youtube;S3UwkdzBaro]http://www.youtube.com/watch?v=S3UwkdzBaro&feature=channel[/video]

    Forum Discussion:
    http://www.forums.aboutmecfs.org/sh...e-video-about-his-poster-at-the-XMRV-Workshop


    CFS Patients Address the CDC

    [video=youtube;y7VdXX9P58w]http://www.youtube.com/watch?v=y7VdXX9P58w&feature=channel[/video]
    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?6489-My-new-cfs-video

    XMRV positive study into CFS still on hold!!! (Government blocks publication).mov



    XMRV Positive study into CFS still on hold!!! (Government blocks publication)

    [video=youtube;vz8pwuDa8aM]http://www.youtube.com/watch?v=vz8pwuDa8aM&feature=related[/video]


    The CDC Hustle

    [video=youtube;_XjyQbK5ttk]http://www.youtube.com/watch?v=_XjyQbK5ttk&feature=channel[/video]
    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?6502-Do-the-Hustle


    The CDC vs CFS/ME....or How NOT To Find A Retrovirus

    [video=youtube;M6QHLMi_mgY]http://www.youtube.com/watch?v=M6QHLMi_mgY&feature=channel[/video]


    The Realities of ME/CFS

    [video=youtube;nb-mkFxRpGM]http://www.youtube.com/watch?v=nb-mkFxRpGM&feature=channel[/video]



    Rising Tide - An XMRV/CFS Story

    [video=youtube;yUUGJ3yE-Gg]http://www.youtube.com/watch?v=yUUGJ3yE-Gg&feature=related[/video]

    Alternate Music:
    http://www.youtube.com/watch?v=HFIsP9_-w5A
    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?6769-My-New-YouTube-Video-CFS-Epidemics


    The Whittemore Peterson Institute - Thankyou - XMRV Chronic Fatigue Syndrome CFS ME

    [video=youtube;q0MTNRpupLU]http://www.youtube.com/watch?v=q0MTNRpupLU&feature=player_embedded[/video]


    XMRV Retrovirus Research Appeal - Chronic Fatigue Syndrome CFS ME

    [video=youtube;iWvWs1rGhrE]http://www.youtube.com/watch?v=iWvWs1rGhrE&feature=related[/video]


    15 Years Ago...

    Living Hell - The Real World of Chronic Fatigue Syndrome
    (produced by Authentic Pictures in association with the CFIDS Foundation, San Francisco, 1992-1993)

    http://vimeo.com/9714250

    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?6404-Historical-video-of-CFS-please-watch


    Primetime Live c.1996

    http://vimeo.com/9714250

    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?6404-Historical-video-of-CFS-please-watch


    Have You Taken Your Sedative?

    Loads more XMRV and CFS videos on thx1138mindlock's youtube channel:
    http://www.youtube.com/profile?user=thx1138mindlock#g/u
  3. Mark

    Mark Acting CEO

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    Doctors on XMRV

    1st International Workshop on XMRV - Q&A Wrap-up Session

    [video=youtube;0r7M_ZEjQ-s]http://www.youtube.com/watch?v=0r7M_ZEjQ-s[/video]
    High quality stream direct from NIH:
    http://videocast.nih.gov/Summary.asp?File=16098
    http://videocast.nih.gov/summary.asp?live=9582


    CFS Advisory Committee (CFSAC)


    All CFSAC Meetings (HHS.GOV)

    http://www.hhs.gov/advcomcfs/meetings/index.html

    CFSAC May 2010

    Right-click the video and select 'Watch on YouTube' to see subsequent parts:
    [video=youtube;l0WvLnj4-Cg]http://www.youtube.com/watch?v=l0WvLnj4-Cg[/video]

    Why John Coffin doesn’t sleep well

    John Coffin, Professor of Genetics and Molecular Microbiology at Tufts University, studies the molecular biology and evolution of retroviruses. He wrote a commentary (A new virus for old diseases?) that accompanied the publication by Lombardi and colleagues of the finding of the new retrovirus XMRV in patients with chronic fatigue syndrome, and has spoken widely about whether this virus has a causative role in the disease. In this video he expresses cautious optimism about the role of XMRV (and related murine retroviruses) in human disease.

    http://www.virology.ws/2010/10/02/why-john-coffin-doesnt-sleep-well/


    Dr Klimas on XMRV - Oct 15, 2009 - ME-CFSCommunity.com


    http://cfsknowledgecenter.ning.com/video/klimas-on-xmrv

    Forum Discussion:

    http://www.forums.aboutmecfs.org/showthread.php?701-Nancy-Klimas-On-Video-on-CFSKnowledgeCenter


    Dr Louis Katz - Aug 16, 2010 - XMRV and Blood Safety

    Hosted by the CFIDS Association of America, Moderated by Kim McCleary
    [video=youtube;ex6iS_2RqiY]http://www.youtube.com/watch?v=ex6iS_2RqiY[/video]


    Dr Bell - Jan 15, 2010 - Lecture on XMRV

    http://vimeo.com/9143012
    http://vimeo.com/9254598
    http://vimeo.com/9261929

    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?2953-Dr.-Bells-Lecture-in-Good-Video


    Dr Anthony Komaroff - The Latest Research on CFS

    In six parts, totalling about 1 hour.

    [video=youtube;nLrL0y1ysV8]http://www.youtube.com/watch?v=nLrL0y1ysV8[/video]

    Parts 2-6:
    http://www.youtube.com/watch?v=ufK7PdJbapE&feature=related
    http://www.youtube.com/watch?v=lchPW7vLep0&feature=related
    http://www.youtube.com/watch?v=oOcDfd5sA1k&feature=related
    http://www.youtube.com/watch?v=E1zmmL5hY84&feature=related
    http://www.youtube.com/watch?v=VwMCw1A-Ms8&feature=related

    Charts referred to in the presentation:
    http://www.cfids.org/webinar/slides-091610.pdf


    Prof. De Meirleir and Dr. Byron Hyde - November 09 - Video interview
    Prof. De Meirleir talks about How his career began, Approach and treatment, Viruses, Elaine De Freitas, The H2S test, XMRV, The future.

    [video=youtube;cu08EOwFVns]http://www.youtube.com/watch?v=cu08EOwFVns[/video]
    [video=youtube;7u78b-ahi74]http://www.youtube.com/watch?v=7u78b-ahi74[/video]


    Ila Singh talks XMRV, replication, drugs, and animal studies

    http://www.ksl.com/index.php?nid=148&sid=10239583&s_cid=E0002

    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?4111-Ila-Singh-talks-XMRV-replication-drugs-and-animal-studies-%28article-video%29


    Peterson/de Meirleir - 26 May 2010 - Q&A at presentation

    [video=youtube;7B5kghQL3x0]http://www.youtube.com/watch?v=7B5kghQL3x0[/video]

    Forum Discussion:
    http://www.forums.aboutmecfs.org/sh...-Meirleir-presentation-26-May&highlight=video


    Twiv - This week in Virology, Interview with Prof Myra McClure

    http://mwvideo.s3.amazonaws.com/ICAAC-TWiV/TWiV99.wmv

    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?7749-Twiv-This-week-in-Virology-Interview-with-Prof-Myra-McClure!


    Dr Yang - Oct 2009 - MedHelp CFS Video

    http://www.medhelp.org/health_videos/Chronic-Fatigue/show/2872
  4. Mark

    Mark Acting CEO

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    Sofa, UK
    The Whittemore-Peterson Institute

    Whittemore Peterson Institute: An Introduction

    [video=youtube;KcQ2aXIIcao]http://www.youtube.com/watch?v=KcQ2aXIIcao&feature=related[/video]


    XMRV - Whittemore Peterson Institute Opens


    [video=youtube;GQJ60UdWz0c]http://www.youtube.com/watch?v=GQJ60UdWz0c&feature=related[/video]

    [video=youtube;4qLrFxxEf6w]http://www.youtube.com/watch?v=4qLrFxxEf6w&feature=related[/video]


    Andrea Whittemore's Speech - WPI/CMM Inauguration

    [video=youtube;ixinFD02uv0]http://www.youtube.com/watch?v=ixinFD02uv0&feature=related[/video]


    Annette Whittemore's Speech - WPI/CMM Inauguration

    [video=youtube;TMmPTwdmOBM]http://www.youtube.com/watch?v=TMmPTwdmOBM&feature=related[/video]

    Full length video with speeches from senators, house members, and local officials:
    http://imedia.unr.edu/cmm/CMM_Grand_Opening.html

    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?7051-WPI-Andrea-amp-Annette-s-powerful-words

    http://www.forums.aboutmecfs.org/showthread.php?7053-OPENING-of-WPI-video


    WPI congratulates Alter and Lo

    [video=youtube;ne7if7FKJFg]http://www.youtube.com/watch?v=ne7if7FKJFg&feature=related[/video]


    Judy Mikovits reacts to the Lo-Alter paper

    [video=youtube;9ZEwQUg7o6I]http://www.youtube.com/watch?v=9ZEwQUg7o6I&feature=related[/video]

    Forum Discussion:
    http://www.forums.aboutmecfs.org/sh....-Judy-Mikovits-Talking-about-The-Alter-paper

    XMRV Breakthrough research for ME/CFS, by WPI (Nevada Newsmakers)


    [video=youtube;_TQzlL0nd6I]http://www.youtube.com/watch?v=_TQzlL0nd6I&feature=related[/video]


    [video=youtube;gDL_-qThmXs]http://www.youtube.com/watch?v=gDL_-qThmXs&feature=related[/video]
  5. Mark

    Mark Acting CEO

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    Patients and Patient Groups

    Patient Groups


    CHANGES trailer:

    [video=youtube;XC0tSgPArrE]http://www.youtube.com/watch?v=XC0tSgPArrE[/video]

    Dystautonomia Information Network:
    http://www.dinet.org/
    Forum discussion:
    http://www.forums.aboutmecfs.org/showthread.php?276-Dinet-s-trailer-to-new-video-on-Dysautonomia


    Patient Perspectives


    Pain, Brain, and Energy Drain

    [video=youtube;-zbG9ruHeyo]http://www.youtube.com/watch?v=-zbG9ruHeyo&feature=related[/video]

    Forum Discussion:
    http://www.forums.aboutmecfs.org/sh...of-the-best-video-ever-on-CFS-by-Rachael-Hall


    "Dear Sec Sebelius, Dear Director Collins" Bedroom Video Campaign

    [video=youtube;8t1Xqp1LDxM]http://www.youtube.com/watch?v=8t1Xqp1LDxM&feature=related[/video]

    Forum Discussion:
    http://www.forums.aboutmecfs.org/sh...quot-Dear-Sec-Sebelius-Dear-Dir.-Collins-quot

    Laurel's October 2009 CFS/CFSAC Testimony

    [video=youtube;LvweCk44WHs]http://www.youtube.com/watch?v=LvweCk44WHs&feature=related[/video]


    All About M.E.

    McCarrick Films:
    "A documentary about M.E sufferer Laura Fursland. A promising young music student , Laura has been living with M.E (Myalgic Encephlomyelitis) for the last two years and this film intends to highlight the problems and issues that arise with this often misunderstood condition.
    With interviews from Laura's mother Jeanette and Dr Charles Shepherd (Chief Medical Advisor to the M.E Association) the film is an emotional and gripping story about one girls struggle to lead a normal life with an illness that few understand."

    Part 1:
    [video=youtube;dWp5W7kHEVo]http://www.youtube.com/watch?v=dWp5W7kHEVo&NR=1&feature=related[/video]

    Part 2:
    [video=youtube;-XhCekXdTBY]http://www.youtube.com/watch?v=-XhCekXdTBY&NR=1&feature=related[/video]

    Forum Discussion:
    http://www.forums.aboutmecfs.org/showthread.php?7342-New-UK-ME-film-%28with-similar-title!%29-quot-All-About-ME-quot-%28MEA-post%29


    XMRV, Greg Crowhurst, Oct 9 2009

    [video=youtube;UoL69mAGrQQ]http://www.youtube.com/watch?v=UoL69mAGrQQ&feature=related[/video]


    I Won't be Bothering My Doctor Again!

    [video=youtube;MhDfQGQrKgE]http://www.youtube.com/watch?v=MhDfQGQrKgE&feature=channel[/video]


    The First UK Based XMRV Study Has Been Published

    [video=youtube;KwGA6coj5FM]http://www.youtube.com/watch?v=KwGA6coj5FM&feature=related[/video]
  6. Mark

    Mark Acting CEO

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    Psychiatry and ME/CFS

    Psychiatrists on ME/CFS

    "ME CFS Doctors trained to neglect" - Training videos for English GP's on how to deal with CFS patients

    Part 1:
    [video=youtube;goz_tTaWmfE]http://www.youtube.com/watch?v=goz_tTaWmfE&feature=related[/video]

    Part 2:
    [video=youtube;cO7ua4IB5Hs]http://www.youtube.com/watch?v=cO7ua4IB5Hs&feature=related[/video]

    Part 3:
    [video=youtube;KYQpFtl2xe8]http://www.youtube.com/watch?v=KYQpFtl2xe8&feature=related[/video]

    Part 4:
    [video=youtube;k5qalCDEOis]http://www.youtube.com/watch?v=k5qalCDEOis&feature=related[/video]

    Forum Discussion:
    http://forums.aboutmecfs.org/showth...English-GP-s-on-how-to-deal-with-CFS-patients


    Introduction by RSM Dean Dr Scadding

    http://rsm.mediaondemand.net/player.aspx?EventID=1294


    What is Chronic Fatigue Syndrome & what is ME? - Professor Peter White, Barts & the London School of Medicine

    http://rsm.mediaondemand.net/player.aspx?EventID=1291


    Epidemiology - Professor Simon Wessely, King's College London

    http://rsm.mediaondemand.net/player.aspx?EventID=1293


    Pathophysiology - Dr Anthony Cleare, Institue of Psychiatry, London

    http://rsm.mediaondemand.net/player.aspx?EventID=1292


    Assessment: general practitioners' approach - Professor Chris Dowrick, University of Liverpool

    http://rsm.mediaondemand.net/player.aspx?EventID=1334


    Assessment: psychiatrist's approach - Professor Matthew Hotopf, Institute of Psychiatry, London

    http://rsm.mediaondemand.net/player.aspx?EventID=1333


    M.E.- The Patient Perspective - Sir Peter Spencer

    http://rsm.mediaondemand.net/player.a...


    Management: NICE Guidelines - Professor Richard Baker

    http://rsm.mediaondemand.net/player.a...


    CBT and GET - Professor Rona Moss-Morris

    http://rsm.mediaondemand.net/player.a...


    What drugs can I use? - Dr Alastair Miller

    http://rsm.mediaondemand.net/player.a...



    Patients on Psychiatry


    XMRV Professors: White and Wessely discuss Einstein and Paxman

    [video=youtube;Dd_LpEoVEDo]http://www.youtube.com/watch?v=Dd_LpEoVEDo[/video]

    [video=youtube;Nuu6Tj235j4]http://www.youtube.com/watch?v=Nuu6Tj235j4&NR=1[/video]

    XMRV Professors: Free Lunch is Evidence-Based

    [video=youtube;j5TekCOJxgU]http://www.youtube.com/watch?v=j5TekCOJxgU&feature=channel[/video]

    XMRV Professors: You couldn't make it up

    [video=youtube;E9Pnz4xXa2M]http://www.youtube.com/watch?v=E9Pnz4xXa2M&feature=channel[/video]

    Simon Wessely Child Abuse Scandal (Ewan Proctor)

    [video=youtube;L5foBQ1TzV0]http://www.youtube.com/watch?v=L5foBQ1TzV0&feature=related[/video]
    Esther12 likes this.
  7. Frank

    Frank Senior Member

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    Europe
  8. Mark

    Mark Acting CEO

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    News Reports

    ME/CFS patient takes antivirals for XMRV (Dutch with English Subtitles)

    [video=youtube;ep0uZwlL_Rw]http://www.youtube.com/watch?v=ep0uZwlL_Rw&feature=related[/video]


    ME Interview Central News (UK) September 2010

    [video=youtube;nKzEEUEapXM]http://www.youtube.com/watch?v=nKzEEUEapXM&feature=related[/video]

    Forum Discussion:
    http://www.forums.aboutmecfs.org/sh...ng-considered-by-prof-wessley-and-myra-mclure
  9. leela

    leela Slow But Hopeful

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    Couchland, USA
  10. Mya Symons

    Mya Symons Mya Symons

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    Wyoming
    This is the question and answer session from the XMRV Conference. Looks like the other was "removed by user" from youtube? Not sure. Does anyone know how to copy the video itself and post it here?

    http://videocast.nih.gov/summary.asp?live=9582
  11. LaurelB

    LaurelB Senior Member

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    9
  12. cigana

    cigana Senior Member

    Messages:
    522
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    139
    UK
  13. cigana

    cigana Senior Member

    Messages:
    522
    Likes:
    139
    UK
  14. LaurelB

    LaurelB Senior Member

    Messages:
    125
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    9
  15. Nielk

    Nielk

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    Queens, NY
    I just found this important thread. It seems like it's been quiet for a while. Anyone have any new viseos to include?
    leela and Sasha like this.
  16. Sasha

    Sasha Fine, thank you

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    Sushi and Nielk like this.
  17. Nielk

    Nielk

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    Dr. Enlander's presentation at Mt. Sinai conference in NY - November 2013.

    Sushi likes this.

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