Wanted by Llewellyn King: Member of Congress to take up the ME/CFS cause
Sasha reports on Llewellyn King’s campaign to find a lone Congress member to do the right thing ...
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Phoenix Rising tweeting live now from Invest in ME 2014 Conference 30 May

Discussion in 'General ME/CFS News' started by Sasha, May 30, 2014.

  1. NK17

    NK17 Senior Member

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    Your guess makes very much sense Mark!

    The two Rituximab replication studies are of absolute, tantamount importance!!

    Next we need a third one here in the US!!!

    By the way thanks for tweeting from the conference;).
     
    Kati likes this.
  2. Jonathan Edwards

    Jonathan Edwards Board Member

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    I would agree with Mark's anaysis. Getting things published is not always straightforward! The Norwegian team are very generous with discussion of their findings with colleagues and to be honest my interpretation is that what matters is that there is nothing to suggest not going ahead with their bigger trial. The follow up study has been very helpful for planning but it was never going to provide definitive conclusions. Things take time, and usually more time than it seems they should.

    I would like to take the opportunity of congratulating IiME and all the delegates at the meeting on such an impressive exercise. This year I attended both the workshop and the open meeting and I feel I am beginning to appreciate the breadth and depth of the quality research going on. And colleagues from other research fields invited this time seemed to be as drawn in to the ME problem as I was last year. It is all still at the stage of elusive clues, but you have an ever expanding team of sleuths on the job. People are getting wise to what they are really looking for and how to look and that to my mind is 80% of the battle.
     
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  3. SDSue

    SDSue Southeast

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    @Sasha Thanks for providing the link to tweets. And thanks to the person who tweeted. Appreciated much.
     
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  4. Sasha

    Sasha Fine, thank you

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    Thanks very much for reporting back on that - it sounds hugely encouraging.
     
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  5. rosie26

    rosie26 Senior Member

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  6. Firestormm

    Firestormm Guest

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    First conference report published by Dr Ros Valings posted online by Invest in ME 9 June 2014:

     
    aimossy, Esther12, Simon and 6 others like this.

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