The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
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Phoenix Rising Snapshots: From Grassroots to Metropolis

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Oct 30, 2012.

  1. Phoenix Rising Team

    Phoenix Rising Team

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    View the Post on the Blog

    View the Post on the Blog
     
    echobravo, bspg, *GG* and 4 others like this.
  2. jimells

    jimells Senior Member

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    northern Maine
    Hi Jody, nice essay. This forum has certainly become a refuge for me. My first exposure to the internet was about 15 years ago. My initial impression was, miles and miles of crap - who needs it. Now my opinion is, miles and miles of crap, with endless opportunities to buy stuff.

    Plus there's Phoenix Rising. :thumbsup:
     
  3. Jody

    Jody Senior Member

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    LOL

    That seems to sum it up pretty well, jimells. :)
     
  4. Enid

    Enid Senior Member

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    Just lovely to see your happy smiling face Jody - very many years ago I heard of Cort searching, attending the real research meetings (Iime here in the UK of world specialists) and his singular dedication to unravelling ME. And Phoenix Rising is unique for all you say - members brought together - many specialists in the sciences or seeking advice, advocacy etc. Great chap that Cort !.
     
  5. Nielk

    Nielk

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    Jody,

    You were one of the first ones to greet me here. I never forgot how good that felt. I try to return the favor as much as I can by greeting newcomers here.
     
  6. ballard

    ballard Senior Member

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    Hi Jody,
    Phoenix Rising means a lot to me, too. Love your essay.
    Sally
     
  7. Jody

    Jody Senior Member

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    Hi Enid

    It's great to see the fruit of things begun years before. Phoenix Rising is still really young, but you can see the expansion and growth continuing to enlarge.
     
    Enid likes this.
  8. Jody

    Jody Senior Member

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    Nielk,

    Seems like it was yesterday in some ways. And in other ways ... :)

    I'm glad that you have been helping to make the newbies welcome. I won't ever forget what that was like, to be new, unknown and feeling lost. And how little it takes sometimes to change that for someone and make a huge difference for them.
     
    Nielk and Enid like this.
  9. Jody

    Jody Senior Member

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    Hi Sally

    Thanks. :)

    I'm glad you've found this place and are benefitting from it.
     
    Enid likes this.
  10. liverock

    liverock Senior Member

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    Hello Jody!

    Nice to hear you remembering the early days and the 'stupid jokes'. ( BTW I'm up to lifting a 200lb potato sack these days).

    Herws the latest:
    Many CFS sufferers cant drink a single glass of wine at night otherwise they would have to gert up several times a night to go to the bathroom.
    A compassionate Californian vintrner in the NapaValley area, which primarily produce Pinot Blanc, Pinot Noir, and Pinot Grigio wines, has developed a new hybrid grape that acts as an anti-diuretic which will help-solve the problem.

    It is expected to reduce the number of trips CFS people have to make to the bathroom during the night.

    The new wine will be marketed as





    PINO MORE

    I HEARD IT THROUGH THE GRAPEVINE!!

    Keith
     
  11. Jody

    Jody Senior Member

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    Liverock,

    I'm glad you finally worked up to heavier potato sacks. I thought that would never happen.

    I've missed the dumb jokes. Looks like you've been keeping them coming. Well done. :)
     
  12. Sushi

    Sushi Senior Member Albuquerque

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    Jody,

    Speaking of the good old stupid jokes (and the really wild and hilarious threads! :D) I miss those too.

    I'd like to see us living a little more on the edge here re: wild, stupid humor. Logging onto Phoenix Rising in the morning started the day with rolling on the floor laughter.

    Remember???

    I couldn't wait for the next post. We have plenty of crazy-smart people here to carry it off. :rofl:

    And there was a whole alternate world on the burn-out bench....

    Sushi
     
  13. Jody

    Jody Senior Member

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    I remember those threads. :) They were often the highlight of my day. And what great scope for mania and creativity.

    Then when we wore ourselves out being hilarious lunatics, ... we would hit the burnout bench. :D
     
  14. GcMAF Australia

    GcMAF Australia Senior Member

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    There are some great people here> well fantastic is a better word.
    sometimes i feel humbled. every day i try to help some one in some way
    sorry i missed the early humour.
     
  15. Jody

    Jody Senior Member

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    Hi GcMAF Australia,

    There are some terrific people here.

    And the great thing about humour is, though it may disappear for awhile, it has a way of ... coming back. ;)
     
  16. liverock

    liverock Senior Member

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    GcMAF Australia
    There are some great people here> well fantastic is a better word.
    sometimes i feel humbled. every day i try to help some one in some way
    sorry i missed the early humour.


    You can still acess all the old jokes(and some new ones), in the Community Lounge,Joke of the Day section.

    http://forums.phoenixrising.me/index.php?threads/joke-of-the-day.574/
     
  17. Victoria

    Victoria Senior Member

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    I remember 2009 well, Jody.

    It was the worst (and best) time of my long chronic ill health story.

    The best because I found genuine friends. like you, who understood where I was coming from and worst, because it was the last year of working full-time. Now in early retirement and living on a Government Disability Pension for the last 7 1/2 years I still remember the Joke and Gardening threads in the Community Lounge area of PR.

    My health is much worse, mainly through other non CFS/FM/MCS health conditions, but I have a life worth living through Photography, Gardening & online interaction with people interested in Photography and Nature from all over the world.

    I don't have the energy to write on health forums anymore, but I do have a rich and absorbing life online (despite health symptoms).
     
    Wayne, CJB and zzz like this.
  18. Victoria

    Victoria Senior Member

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    The humour back in 2009 & 10 was hilarious GcMAF. I had collected some 300 jokes and funny stories through the early years of email at my workplace and although many were too risqué to upload, the other jokes kept up going for months.
     
    GcMAF Australia likes this.
  19. Jody

    Jody Senior Member

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    That year was epic for me as well,Vicki. I went from feeling completely invisible for a span of years to entering a new world online and much of the change was due to people like you here on PR. It was like I was coming back to life ... and I hadn't expected to. Ever. We had an everlovin' gas on here.:)
     
    GcMAF Australia likes this.

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