Phoenix Rising supports the Millions Missing global day of protest
Phoenix Rising is delighted to support the demands being made in the ME/CFS community’s first-ever global day of protest …
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Phoenix Rising Forums Accomplishments

Discussion in 'Action Alerts and Advocacy' started by Cort, Feb 14, 2010.

  1. Cort

    Cort Phoenix Rising Founder

    This is a section to post accomplishments rising out of the Phoenix Rising Forums

    Complete Transcriptions of

    • Dr. Peterson's Talk at the CFSAC Meeting (Oct 28/29th '09)
    • Dr. Coffin's Talk at the CFSAC Meeting (Oct 28/29th '09)
    • XMRV Q&A Session at the CFSAC Meeting (Oct 28/29th '09)
    • Dr. Klimas's 2 Hour XMRV Lecture (Oct '09)
    • Dr. Bell's Tustin, Ca XMRV Lecture (Jan ''09)
    • Dr. Mikovits Santa Barbara, Ca XMRV Lecture (Jan '09)
    • The Dr. Raccaniello/Dr. Goff Talk on XMRV (April '10)

    Activities

    • New Day Treatment Review Group - for 4 months or so the New Day Group publicly followed 4 patients as they underwent treatment with the doctor that cured Mike Dessin. Negative activities on the Prohealth Message Boards and elsewhere resulted in the group being turned into a private group (August 2009).
    • Phoenix Rising Action Group - Frank creates a mailing list that provides members of the Phoenix Rising Forums and ME/CFS patients quick access to actions that make a difference. (March 2010)
    • "SockIt2ME/CFS" Public Art Activism 'socks' project (aka the AID's Quilt) and a website to house the project created by Creekfoot and her compatriots (April 2010)
    • Comprehensive XMRV+ survey Over several months Kim, Advocate, Julius and other members of the Phoenix Rising Forums create an XMRV survey to characterize people who tested positive for XMRV (May 2010)

    Fundraisers


    Video's


    Stories

     
  2. Julia Rachel

    Julia Rachel

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    California
    Amazing accomplishments!!!
     
  3. JillBohr

    JillBohr Senior Member

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    Columbus, OH
    This is the best site EVER! I remember several weeks ago (on a Thursday - my day off) and it was down for several hours. It was a very difficult time for me. This is the first place I go to when I have time to surf.
     
  4. Rick56

    Rick56

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    hi

    one thing about chronic fatigue you eventually feel better it took me about 4 years but it does happen.
     
  5. Min

    Min Guest

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    UK
    Well done Cort, that's brilliant!

    yes but chronic fatigue is a completely different illness to myalgic encephalomyelitis (I have had a severe form of it for the last 16 years with no remission ) - sometimes called by the ridiculous name of chronic fatigue syndrome:

    WORLD HEALTH ORGANISATION (W.H.O.) DEFINITION OF M.E. ME/CFS is an acquired organic, pathophysiological, multi-systemic illness that occurs in both sporadic and epidemic forms. Myalgic Encephalomyelitis (ICD 10 G93.3), which includes CFS, is classified as a neurological disease in the World Health Organization's International Classification of Diseases (ICD). Chronic fatigue must not be confused with ME/CFS because the "fatigue" of ME/CFS represents pathophysiological exhaustion and is only one of many symptoms. Compelling research evidence of physiological and biochemical abnormalities identifies ME/CFS as a distinct, biological clinical disorder.

    M.E. is now being linked to a gamma retrovirus - without medical intervention people with this retrovirus will never 'feel better'
     

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