1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Phoenix Rising Articles related to Institute of Medicine (IOM) issues

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Kina, Oct 23, 2013.

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  1. Kina

    Kina Moderation Team Lead

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    1. Patients to DHHS: Cancel the IOM Contract! -- Gabby (Nielk) reviews the shennanigans employed by the DHHS recently to try and blindside us with a new clinical definition for our disease; and explains how you can help stop them...

    2. International experts speak out against the IOM contract to determine clinical diagnostic criteria -- Mary Dimmock reviews a most welcome announcement from our expert clinicians and researchers who have urged HHS to adopt the Canadian Consensus Criteria and save money by cancelling the contract with the Institute of Medicine...

    3. The Nightmare Scenario – IOM Case Definition Contract Terrifies ME/CFS Advocates -- Gabby (Nielk) presents a nightmare vision of what the future might hold for ME/CFS patients in the US, if the Institute of Medicine (IOM) contract to redefine ME/CFS turns out as badly as many patients and advocates fear.

    4. Death Contract? ME/CFS Experts and Advocates Unite to Oppose US 'Case Definition' Contract -- Mark Berry asks why the US HHS contract with the Institute of Medicine (IOM) to re-define ME/CFS has provoked such an unprecedented storm of protest, and explores the reactions of patients, organizations, experts and bloggers to the so-called ‘Death Contract’.

    5. The Panel is out - What Now? December 23rd Deadline for Public Comments on IOM Panel -- Ahead of the December 23rd deadline for public comment on the proposed IOM panel to create clinical diagnostic criteria for ME/CFS, Gabby Klein reviews the continuing opposition to the HHS/IOM Contract and the more favorable response from some ME/CFS organizations, and offers her personal take on the controversy.
     
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