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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Phenylalanine & ME - Who do I ask to see?

T

Tilney

Messages
49
I have found phenylalanine temporarily helps with a reduction of my MS/Parkinson’s like symptoms

I have had a negative MRI & DAT scan.

I think some form of diagnosis / medication could improve my life but am not sure if there is any test that would show if I have a deficiency or what specialist my GP should refer me to

- North London area would be ideal or I would be prepared to travel if it was to see someone who understood ME/CFS
 
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