You clearly are very passionate about the injustices we face as people with ME, I'm with you on that, I'm not your opposition.
Yes you are correct I am very passionate with regard to ME advocacy. I do feel this (the MEA in concert with the CMRC) is a central and pivotal issue. I apologise I misconstrued the thrust of argument in your original post. I did use the word 'collusion' when in addled cognitively challenged , very unwell, mode: I'm sure I meant 'collaboration'. Mea culpa. But the substance of my argument remains. As far as its importance when compared to other issues, I suppose that depends on how any of us view the power of the BPS model and its proponents and its/their effect on the politics of this disease. Imo they are so enmeshed, like a metastasizing cancer, that I find it hard to understand why others don't feel as passionately about this as I do in trying to tease one ('us') from the other ('them').
Fwiw I am a long term (almost 50 yr long) sufferer of this disease. I have been VERY badly iatrogenically harmed by the BPS model of this disease, to the extent that I could have lost my life at the hands of that model. I do not wish other patients to have to breach that wall, the one side of which this disease, whilst pretty horrific, is 'doable' to discover that on the other side there is hell unimaginable to most people including many sufferers of this disease (but not all by a long chalk and maybe you are one of them?). Surely good, strong, passionate advocacy is better than waiting for the body count to increase before people really get to grips with the absurdity of a patient charity happily 'canoodling' ( ) with a 'collaboration' in which the opponent rules the roost?