I've had a look around and I don't think this petition is posted anywhere else on PR. It was started a couple of days ago and is requesting that the ME Association leave the CMRC. Given the current news with regard to NICE deciding not to review its guidelines on MECFS, I think this petition really needs attention. Enough is enough. The UK establishment are simply toying with patients and patient organisations. https://you.38degrees.org.uk/petitions/me-association-to-leave-the-cmrc "This is to show that the ME Association should best use its resources on biomedical research already happening in the UK and indicate that the CMRC (CFS/ME Research Collaborative) is not fit for purpose. The collaborative is run and consists of people who consider the PACE trial a good piece of science. The initial aim for the collaborative is to raise a huge amount of money for a biobank when the ME Association is already involved with one which could be improved upon instead. The collaborative has a poor grasp of the definition of Myalgic Encephalomyelitis and the need and urgency of those on the severe end of the spectrum. The ME Association in leaving the CMRC will help the political situation ME patients find themselves in by opposing those who defend poor science not collaborating with them and thereby indirectly giving them credence. Other authorities and the government will then see clearly where the ME Association stands (and therefore patients) with regards to the biopsychosocial model of ME"