Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Petition: Reinstate CDC Research Funding for ME/CFS - #MEAction

Discussion in 'Petitions' started by Sasha, Aug 7, 2015.

  1. Sasha

    Sasha Fine, thank you

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    Get cracking!

    International petition - we can all help.

    http://my.meaction.net/petitions/reinstate-federal-research-funding-for-me-cfs

     
    Countrygirl, catly, Mary and 3 others like this.
  2. Sasha

    Sasha Fine, thank you

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    UK
  3. minkeygirl

    minkeygirl But I Look So Good.

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    Left Coast
  4. Bob

    Bob

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    I don't mean to be insensitive or ungrateful, but I couldn't work out what the petition was for when I came across it earlier. I don't know if that's the fault of the petition website or the wording of the text. I think it could do with a better title, a summary, and a slight rewrite of the text, for the benefit of potential signatories and recipients. It's quite a lot of text to plough through as it is, and not self-explanatory. Better to send an email using the email templates, I think. Or send the email and then sign the petition.
     
    Last edited: Aug 7, 2015
    Sasha likes this.
  5. Sasha

    Sasha Fine, thank you

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    I agree it's very long.

    I agree that doing both an email and signing the petition is best.
     
    Bob likes this.
  6. Bob

    Bob

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    Last edited: Aug 9, 2015
    mango likes this.

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