Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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Petition for More NIH Funding

Discussion in 'Petitions' started by shastamax, Mar 16, 2015.

  1. Sasha

    Sasha Fine, thank you

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    I don't know her but she won't get your info, according to the privacy info on the site (which won't let me copy it, sorry):

    http://www.thepetitionsite.com/petitionfaqs.html

    Click on the second option on the list - 'Who will see my signature information?'
     
    oceiv and catly like this.
  2. shastamax

    shastamax

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    Thanks to everyone for signing. We're over 400 signatures now. I'm going to get as many as we can over a reasonable period of time. Let's get to 1000 and see if we still have momentum. After that it goes to Francis Collins, head of the NIH, and to the CFS Advisory Committee. I will also encourage everyone who signed who is a US resident to send it to their Congresspeople. By the way, I am an ME/CFS patient who has had this illness for 21 years. I decided to do this because post-IOM report, no one else seemed to be doing it and I felt that after all the talk about the new name, definition, etc. what we really need to do is take action, particularly on research funding.
     
    WillowJ, rosie26, Kyla and 8 others like this.
  3. shastamax

    shastamax

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    Yes, I am Marilyn Lemmon and am an ME/CFS patient. I have had it for 21 years and just decided to try my naive hand at being an activist.
     
    WillowJ, rosie26, Kyla and 7 others like this.
  4. Sasha

    Sasha Fine, thank you

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    Great job, Marilyn!
     
    WillowJ, oceiv, Iquitos and 3 others like this.
  5. Sasha

    Sasha Fine, thank you

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    460 signatures - please sign if you haven't already, and share the petition via FB etc. etc.!
     
    oceiv, catly and Gingergrrl like this.
  6. Gingergrrl

    Gingergrrl Senior Member

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    Signed it and got several others to sign it too! Great job Marilyn and we need biomedical research funding as priority #1 IMO.
     
    WillowJ, oceiv, aimossy and 1 other person like this.
  7. Sasha

    Sasha Fine, thank you

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    Nice going! :thumbsup:
     
    oceiv and Gingergrrl like this.
  8. catly

    catly Senior Member

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    Thanks @shastamax / Marilyn petition signed!
     
    Sasha, Gingergrrl and oceiv like this.
  9. Wally

    Wally Senior Member

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    Petition signatures just hit the 500 mark.
     
  10. Sasha

    Sasha Fine, thank you

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    WillowJ, catly and Gingergrrl like this.
  11. DiamondEye

    DiamondEye

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    Signed. My petition comment text below:

    "This disease has been discounted, its research bungled, and its patients ignored for decades now. More research money is allocated to headaches than to CFS. The cytokine studies from Lipkin/IOM are compelling, and the answers are out there. It is time to find biomarkers so the suffering can be officially diagnosed, and to find effective medications to reduce and eradicate this disease. It is long overdue."
     
  12. Gingergrrl

    Gingergrrl Senior Member

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    Sasha likes this.
  13. Gemini

    Gemini Senior Member

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    Signed, 889 signatures at this time...
     
    Last edited: Mar 28, 2015
    oceiv, Gingergrrl and Sasha like this.
  14. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Up to 922 now.
     
    oceiv, rosie26, aimossy and 2 others like this.
  15. Roseblossom

    Roseblossom

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    Snow Leopard, oceiv, catly and 2 others like this.
  16. Snow Leopard

    Snow Leopard Hibernating

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    I'd vote but I'm not American!
     
    oceiv likes this.
  17. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    I'd say sign anyway, and comment how US research can help you!
     
    Roseblossom and Gingergrrl like this.

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