Phoenix Rising supports the Millions Missing global day of protest
Phoenix Rising is delighted to support the demands being made in the ME/CFS community’s first-ever global day of protest …
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Petition for More NIH Funding

Discussion in 'Petitions' started by shastamax, Mar 16, 2015.

  1. shastamax

    shastamax

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    San Francisco Bay Area
    Last edited: Mar 18, 2015
    WillowJ, rosie26, Roseblossom and 7 others like this.
  2. *GG*

    *GG* Moderator

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    Concord, NH
    Signed.

    GG
     
  3. Mary

    Mary Senior Member

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    oceiv likes this.
  4. aimossy

    aimossy Senior Member

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    Signed.
     
  5. SpecialK82

    SpecialK82 Ohio, USA

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    Thanks for posting. Signed!
     
  6. Sasha

    Sasha Fine, thank you

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    Bump!

    240 signatures now.

    Please sign and share!
     
  7. Sasha

    Sasha Fine, thank you

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    The target for the petition is the NIH.

     
  8. Scarecrow

    Scarecrow Revolting Peasant

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    Signed
     
    Sasha likes this.
  9. Sasha

    Sasha Fine, thank you

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    Alas, we non-US bods don't count for this particular petition. :(
     
    aimossy and oceiv like this.
  10. Scarecrow

    Scarecrow Revolting Peasant

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    Oops! I didn't read the bit right at the end. People from all over the place have signed.
     
    aimossy likes this.
  11. Sasha

    Sasha Fine, thank you

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    Well, it can't hurt, I suppose! :)
     
    WillowJ and Scarecrow like this.
  12. lnester7

    lnester7 Seven

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    Signed and shared in FB for all family and friends to help
     
    WillowJ and Sasha like this.
  13. Sasha

    Sasha Fine, thank you

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    aimossy likes this.
  14. snowathlete

    snowathlete

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    what happens when it gets to the 1000 target?
     
    oceiv likes this.
  15. Sasha

    Sasha Fine, thank you

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    No idea!
     
    snowathlete and oceiv like this.
  16. Nielk

    Nielk

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    I just noticed this at the bottom of the petition-

     
  17. catly

    catly Senior Member

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    I went to sign it but it asked for full name, address and I never heard of Maryiln Lemmon before. If someone can confirm that she is a PWME and that the petition is legit, I will gladly sign.

    (sorry, just been a little cautious lately with giving out identifying information).
     
    oceiv likes this.
  18. acer2000

    acer2000 Senior Member

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    Signed. Thanks for the heads up.
     
    oceiv likes this.
  19. Denise

    Denise Senior Member

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    Is this the entire text of the petition?

    "According to the recent Institute of Medicine report, up to 2.5 million Americans have chronic fatigue syndrome (ME/CFS).

    Patients with ME/CFS are more functionally impaired than those with other disabling illnesses, including congestive heart failure, multiple sclerosis, and end-stage renal disease.


    The NIH funds ME/CFS at $5 million per year, and that amount is estimated by the NIH to stay about the same through 2016. The NIH spends almost 10 times more on attention deficit disorder, 15 times more on infertility, and 80 times more on depression.


    The IOM report confirms this dismal state of affairs, stating that remarkably little research funding has been made available, especially given the number of people afflicted.


    Please help get more funding for this devastating and badly neglected illness. Please sign only if you are a resident of the United States. Thanks!"


    Is there a dollar amount requested?
    (I would be slightly more at ease if there were specifics about types of research to be funded (as in biomedical).)
     
    oceiv and Nielk like this.
  20. Sasha

    Sasha Fine, thank you

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    Yes.

    No, no specific dollar amount requested.

    Personally, I don't think the NIH would get away with expanding its budge and spending a load of it on psych research in this day and age - we're in a new dawn now, I think. Even if the petition specified that it should be biomed, there'd be nothing to hold the NIH to that, though.

    Let's not let the perfect be the enemy of the good, though! This is the only petition I've seen that calls on the NIH for more funding post-IOM-report so I think we should support it and make the most of it.
     
    WillowJ, SOC and oceiv like this.

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