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PETITION for AN APOLOGY RE: ME/CFS (to Assistant Sec.of Health)

Discussion in 'Petitions' started by Dreambirdie, Oct 24, 2011.

  1. jen1177

    jen1177

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    personal info displayed or not?

    Does anyone know if when you sign the petition...does it show all your info like your email address and physical address, or just your name? I don't mind my name being publicly viewable on the petition but I don't want any other info to be public.
  2. Dreambirdie

    Dreambirdie work in progress

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    Your name will only be viewable if you leave the check on that option: DISPLAY MY SIGNATURE PUBLICLY (under the word SIGN).
    No other info is viewable at all.
  3. Nielk

    Nielk

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    How about your tarot card? Will they know what your tarot card for the day is? Or if you use three will they know all three and the sequence?
  4. Dreambirdie

    Dreambirdie work in progress

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    Somebody's circuits are acting silly today. :)
  5. Nielk

    Nielk

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    My circuits are going haywire because I suffer from a neuroimmune disease which renders my brain overexcitable. Left untreated it causes oversensitivity in my brain which at times drives me crazy.
  6. Dreambirdie

    Dreambirdie work in progress

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    Don't I know it!
  7. Nielk

    Nielk

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    Yeah - someone gets it!
  8. leela

    leela Slow But Hopeful

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    I get it alla time! ;)
  9. Nielk

    Nielk

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    Thanks- oops, a few more tears just fell.
  10. Dreambirdie

    Dreambirdie work in progress

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    394 signatures as of this morning. Just 106 more are needed.
  11. ballard

    ballard

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    mezombie likes this.
  12. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    I preffer the image of a proctologist with jackhammer...you know, ahem!
    Hey it works for me!!
    *evil grin as "Night on Bald Mountain" plays* :p
    mezombie likes this.
  13. mezombie

    mezombie Senior Member

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    I just wanted to set people's mind at ease about petition privacy issues.

    Change.org collects email and snail mail address info to make sure you're human.

    However, the only thing the recipients of the petition and even the originator of the petition sees is your name.

    And if you're queasy about that, just uncheck the "show my signature" box and you'll be counted without having your name on the petition.

    399 signatures as of now -- who wants to be the 400th?
  14. Dreambirdie

    Dreambirdie work in progress

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    We are at 403 this morning. Only 97 to go. Yay for us!
  15. mezombie

    mezombie Senior Member

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    East Coast city, USA
  16. Dreambirdie

    Dreambirdie work in progress

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    437 as of this morning. We are crawling closer to our goal. Please keep the signatures coming.
  17. mezombie

    mezombie Senior Member

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    Remember, every time someone signs, emails are sent to seven different federal officials. The text asks for increased NIH research funding as well as changes to the CDC website along with an apology.

    We have 456 signatures as of now. Let's bug Assistant Secretary Koh, CFSAC Designated Federal Official Nancy Lee, and key policymakers at the NIH and CDC with lots of emails!
  18. Dreambirdie

    Dreambirdie work in progress

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    Just 28 more signatures needed to reach the goal of 500.

    Anybody who hasn't signed, please do so. THANKS.
  19. mezombie

    mezombie Senior Member

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    With CFSAC meeting, this is a great time to send a message to the Federal officials making ME/CFS policy. Signing will generate an email asking for increased and targeted NIH research funding as well as CDC changes to its website to eight different government officials, including several at the CFSAC meeting RIGHT NOW.

    http://www.change.org/petitions/apologize-for-not-responding-appropriately-to-the-mecfs-epidemic

    We're only 23 signatures away from the goal of 500.

    If you've signed, please share the link with others.
  20. PhoenixDown

    PhoenixDown Senior Member

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    epidemicis a bad choice of word since not every person with ME/CFS is necessarily staying ill due to a virus.

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