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Peterson Talking for 1 hour at CFSAC Meeting on XMRV

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Daisymay, Oct 16, 2009.

  1. Daisymay

    Daisymay Senior Member

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    Wow this is AMAZING Peterson getting to talk for one hour on XMRV at the CFSAC
    meeting!
    BW,
    Daisymay


    http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac091029_agenda.html

    CFSAC Agenda - October 29-30, 2009

    U.S. Department of Health and Human Services
    CHRONIC FATIGUE SYNDROME ADVISORY COMMITTEE

    10:15 a.m. - 11:15am


    Presentation: XMRV Association with CFS
     
  2. shrewsbury

    shrewsbury member

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    CFSAC Agenda - October 29-30, 2009

    thanks for this daisymay - it looks promising, doesn't it - 1 hr for the Whittemore Peterson Institute on xmrv 1st thing on the 1st day and also Dr David Bell for 1/2 hr at 3:30 on the 1st day!

    below is the whole agenda for those interested

    (ps I also emailed the HHS to ask about being able to watch the meeting live or soon after - I'll attach my letter below in case anyone wants to do the same - may help them realize even more how many people are interested even if unable to be there + think it would be cool to get a live feed or tape to hear it all 1st hand)

    http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac091029_agenda.html

    my email

    cfsac@hhs.gov
     
  3. shrewsbury

    shrewsbury member

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    CFSAC meeting via videocast

    The proceedings of the meeting will be accessible via videocast. More information will be posted on the CFSAC website at http://www.hhs.gov/advcomcfs/
     
  4. Aftermath

    Aftermath Guest

    Nih

    Good to see that the NIH will be represented.

    Much has been said about the CDC's bungled efforts to handle this illness. What many PWCs do not realize is that they are really small potatoes compared to NIH.

    What we really need is for the NIH to get broadly involved with funding research.
     
  5. shrewsbury

    shrewsbury member

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    CFSAC videocast info

    I agree Aftermath - it's like asking to speak with a manager when not happy with the front-line level service.

    HHS sent me a personal response in hrs! Here's the info on how the get the videocast live or later

     
  6. hvs

    hvs Senior Member

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    I think that we have reason to be hopeful about the NIH (from wpinstitute.org):

    "September 24, 2009: WPI Awarded Prestigious NIH R01 Grant
    New Strategies to Decipher the Pathophysiology of Chronic Fatigue Syndrome

    WPI Research Director Dr. Judy Mikovits and collaborator Dr. Jonathan Kerr of St. Georges College in London were awarded this $1.6 million grant by the National Institute of Allergy And Infectious Diseases. This 5 year grant will provide critical support for the ongoing research into the causes and diagnosis of neuro-immune diseases."
     
  7. dannybex

    dannybex Senior Member

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    Seattle
    Thanks IslandFinn...

    for all the links and info!

    "9:00am: Housekeeping"...

    Well at least they're giving Reeves a job he's more suited to...
     
  8. shrewsbury

    shrewsbury member

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    do you mean sweeping things under the rug?
     
  9. Frickly

    Frickly Senior Member

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    Texas
    He...he....he....

    Very clever.....
     
  10. Dreambirdie

    Dreambirdie work in progress

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    N. California
    He really does make a great villain.
     
  11. Tight Fisted

    1.6 Million grant?

    What a joke!

    A disease that affects millions of people in the USA and after this news they give a piffling........(drum roll).

    $320,000 per year.

    In the UK, a country with 5x smaller population, the DOH (Department of Health) gave Psychiatry, nearly 10x this amount. ($13.8 Million).
    http://www.dh.gov.uk/en/Publicationsandstatistics/Pressreleases/DH_4024394

    To keep up the disinformation CFS is 'Neurosis with a new banner' and
    'Chronic long term tiredness'.

    :mad:
     
  12. kamina

    kamina Retired account

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    Hey, it's a start. It's approx. 1.6 million more research funding that we ever could have hoped for before the WPI's discovery.
     
  13. shrewsbury

    shrewsbury member

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    hiya - Don't despair - I actually have no idea of how much money in total is given to ME/CFS by the US gov't. This was just one grant.

    Weird that it is the Dept of Psychiatry that's funding ME research in the UK:confused: Well - I'll be pollyannish in reply to what sounds like a darker day for you and say that hopefully the xmrv news, especially under the WPI direction, along with the work of Dr Light on measurable fatigue and other research that is popping up with measurable signs of ME/CFS will de-fang those who want to drag ME/CFS back into the dark ages.
     
  14. hvs

    hvs Senior Member

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    1.6 mill. grant is more than the WPI's entire operating budget for one year. ;)
     

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