Peter White (PACE) in the Guardian

[AndyPR]

Remember troops, a Guardian account is free and then enables you to comment and recommend comments, so lets get to it!!

 

[Valentijn]

Yeah, there's some great comments there already. Let's keep 'em at the top!

 

[slysaint]

Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and exercise therapies can make a real difference

 

[TiredSam]

However, many patients were not using them, following instead a self-guided treatment called “pacing”: listening to the messages from their bodies and pacing themselves – trying not to do too much, wary of pushing themselves to a point where they might make the illness worse.

And by recovery we mean recovery from a patient’s present episode of illness – which is not necessarily the same as being cured, as someone might fall ill again.

If that's the current definition of "recovery", I can achieve that by pacing and rest. So what advantage does CBT and GET give me? The same result but with the risk of doing GET wrong and making myself worse?

From here on this should have become a happier story. However, some of the ensuing newspaper headlines – such as “Got ME? Just get out and exercise, say scientists” – gave the misleading impression that patients just needed to pull themselves together, or even that they were making it all up. In our clinics we had seen far too much suffering to ever think this illness could be dismissed in this way.

You had a duty to point that out five years ago and you didn't. Bit late now.

 

[Sasha]

Just voted @Jonathan Edwards up and posted myself.

Good grief.

 

[Mrs Sowester]

If anyone wants to post a comment but doesn't want to start a guardian account I'll be happy to post for them and give them credit - just pm or post it here and I'll copy and paste.
But fast please! posts in earliest get the most views

 

[Snow Leopard]

Wow!

Tweaks!

Wow!

Tweaks! As primarily suggested by Peter White in the protocol!

 

[Valentijn]

Tweaks! As primarily suggested by Peter White in the protocol!

Those naughty tweaking patients

 

[Snow Leopard]

Why is Peter white so excited about treatments that had null results at ~2.5 years?

 

[richio76]

I have put a comment in but it has immediately disappeared.

Would it be worth asking the Guardian for a right of reply?

 

[aimossy]

http://healthinsightuk.org/2016/09/...fraction-as-effective-as-experts-claim-it-is/

Is someone able to post this peice in the guardians comments?

 

[Mrs Sowester]

http://healthinsightuk.org/2016/09/...fraction-as-effective-as-experts-claim-it-is/

Is someone able to post this peice in the guardians comments?

done

 

[Valentijn]

Why is Peter white so excited about treatments that had null results at ~2.5 years?

Obviously it means that ME patients need brainwashing CBT for the rest of their lives for a small percentage to keep believing they are recovered That's great news for all CBT practitioners!

 

[slysaint]

@harveythecat anything you can do to reply to this pack of lies?

 

[worldbackwards]

This has a whiff of the SMC about it, I think. Narrative getting out of control: who are our friends?

 

[A.B.]

White seems to believe in digging your way out of a deep hole.

 

[TiredSam]

The comments section won't be in the print version. He's taking a Newt Gingrich approach - what matters isn't facts, but how people feel. So he's fighting for the hearts of people who don't have access to the facts.

 

[Mrs Sowester]

The comments section won't be in the print version. He's taking a Newt Gingrich approach - what matters isn't facts, but how people feel. So he's fighting for the hearts of people who don't have access to the facts.

Which has been the MO throughout

 

[Valentijn]

A comment from one of the re-analysis authors, presumably @Tom Kindlon :

 

[Gijs]

How many patiënts do suffer from CBT/GET because of him and Chalder e.a. A lot! It is not safe for everyone, i ended up in a wheelchair by stupid and grazy people like them. He must be sued.