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Peter White at it again - Now its a 'GETSET' Trial

Discussion in 'Latest ME/CFS Research' started by Wildcat, Apr 10, 2012.

  1. Sean

    Sean Senior Member

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    Seems to me that A is not possible, and that B inevitably leads to C.

    So, yes, all roads lead to C.
     
  2. oceanblue

    oceanblue Senior Member

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    (not important, more to complete my notes). Just came across the excellent Jason review of PEM which mentions the Lights study used 20 minutes of excercies at a fixed heart rate ie much longer than the 6MWT and also not self-paced.
     
  3. PhoenixDown

    PhoenixDown Senior Member

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    A specialist? Who's specialist though? One of those "faulty illness belief" specialists by any chance? Potentially very misleading if it means what I think it means.
     
    Min, peggy-sue, Enid and 1 other person like this.
  4. Graham

    Graham Senior Moment

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    Hi Anne. Sorry about not replying sooner, but I have only just joined this thread. The GETSET trial is being financed by the NHS through its NIHR operation. I don't know how much it costs yet though. Here is a link to their data:

    www.ccf.nihr.ac.uk/PGfAR/about/Pages/FundedProgrammes.aspx

    White's 3 MRC grants must include the PACE trial, which isn't finished although it should be put out of its misery. Here's a link to a large spreadsheet of MRC investment over the years: it takes ages for it to be loaded. Looking through it, I can only find the PACE trial under his name: presumably the other two have a different lead author.

    www.mrc.ac.uk/Utilities/Documentrecord/index.htm?d=MRC009457
     
  5. Dolphin

    Dolphin Senior Member

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    From the minutes of UK CFS/ME Research Collaborative Meeting 5.6.14 (i.e. June 5, 2014)

    http://www.actionforme.org.uk/Resources/Action for ME/Documents/chair-approved-cmrc-minutes-5614-jm.pdf

    Thread for discussion on the minutes in general: http://forums.phoenixrising.me/inde...orative-meeting-5-6-14-i-e-june-5-2014.32330/
     
  6. Graham

    Graham Senior Moment

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    I'm afraid the first link that I posted in my previous post is broken. I don't know why, but am chasing it up. It was the first good listing of medical research studies over the last 25+ years, with details and funding. Now it has gone.
     
  7. Dolphin

    Dolphin Senior Member

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    Anyone here happen to save it?
     
  8. Graham

    Graham Senior Moment

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    I have been in touch with the people running the site, and they don't know. They passed me on to a person at NIHR who gave me two links, one only dealt with current studies, and the other link was broken. He then went on holiday, but I have heard from him that he is now back and looking into it.
     

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