Discussion in 'Latest ME/CFS Research' started by Wildcat, Apr 10, 2012.
Seems to me that A is not possible, and that B inevitably leads to C.
So, yes, all roads lead to C.
(not important, more to complete my notes). Just came across the excellent Jason review of PEM which mentions the Lights study used 20 minutes of excercies at a fixed heart rate ie much longer than the 6MWT and also not self-paced.
A specialist? Who's specialist though? One of those "faulty illness belief" specialists by any chance? Potentially very misleading if it means what I think it means.
Hi Anne. Sorry about not replying sooner, but I have only just joined this thread. The GETSET trial is being financed by the NHS through its NIHR operation. I don't know how much it costs yet though. Here is a link to their data:
White's 3 MRC grants must include the PACE trial, which isn't finished although it should be put out of its misery. Here's a link to a large spreadsheet of MRC investment over the years: it takes ages for it to be loaded. Looking through it, I can only find the PACE trial under his name: presumably the other two have a different lead author.
From the minutes of UK CFS/ME Research Collaborative Meeting 5.6.14 (i.e. June 5, 2014)
http://www.actionforme.org.uk/Resources/Action for ME/Documents/chair-approved-cmrc-minutes-5614-jm.pdf
Thread for discussion on the minutes in general: http://forums.phoenixrising.me/inde...orative-meeting-5-6-14-i-e-june-5-2014.32330/
I'm afraid the first link that I posted in my previous post is broken. I don't know why, but am chasing it up. It was the first good listing of medical research studies over the last 25+ years, with details and funding. Now it has gone.
Anyone here happen to save it?
I have been in touch with the people running the site, and they don't know. They passed me on to a person at NIHR who gave me two links, one only dealt with current studies, and the other link was broken. He then went on holiday, but I have heard from him that he is now back and looking into it.
You can also try a Google Site Search
Separate names with a comma.