Peter Tatchell: stigmatisation of ME/CFS #PACEtrial campaigners similar to what he faced

[BurnA]

He's attempted an arrest twice. This video is an entertaining description of the other attempt...

Great video and great story !

He sounds like exactly the type of person we would want on our side.

 

[CFS_for_19_years]

Living here in the US, I had been unaware of Peter Tatchell's work until now. He's not only an LGBT activist, but is best described as a human rights activist, (thanks Wikipedia). I think he's a great one to have on our side.

http://www.petertatchell.net/

BTW, that last video was a hoot. He's smart, funny and knows how to think on his feet.

 

[Esther12]

Flicking through Tatchell's twitter feed does make PACE seem like less of a big deal... it's still really bad though!

 

[BurnA]

That video got me thinking, do we have any grounds to make a citizens arrest on our PACE trial authors ?

 

[Mrs Sowester]

That video got me thinking, do we have any grounds to make a citizens arrest on our PACE trial authors ?

@richio76 might you know something about this? (Don't know where you are based or what field you practice in, sorry if I'm out of line tagging you into this one).

 

[worldbackwards]

That video got me thinking, do we have any grounds to make a citizens arrest on our PACE trial authors ?

I doubt it; it's not a crime to change your protocol to make things look better, just bad behaviour. But it made me smile.

 

[chipmunk1]

A psychiatrist, Dr. Fink, writing in the Journal of ECT (June 2014) had this to say of patient complaints;

“Complaints of persistent memory loss in otherwise well-functioning individuals after recovery from a psychiatric illness through ECT are best viewed as a conversion reaction or a somatoform disorder.”

I am not sure if people realise that Fink is citing Wesseley research as evidence that such somatisation disorders exist.

http://www.rheumatologynetwork.com/articles/camelford-hysteria-lesson-ect/page/0/1

He is referring to Wesseley's publication regarding the Camelford accident. Another possible huge biospychosocial scandal that was never made public.

http://www.dailymail.co.uk/news/art...oning-evidence-dirty-water-KILLED-people.html

Basically he says that ECT memory loss is somatoform because Wesseley said Aluminum poisoning symptoms in Camelford were all in the mind. Circular reasoning at it's best.

Fink is old enough to have used Insulin Coma on patients when it was still popular. Fatality rate 5%.

If you were working in a psychiatric institution back then you would definitely kill a lot of patients using pseudoscientific crap. Some people never learn it seems. Quacks, Fraudsters or worse.

 

[Cheshire]

He doesn't give up:

https://twitter.com/i/web/status/778981017768058881

 

[AndyPR]

I posted the link to the Stat News article on his Facebook page but he obviously prefers Twitter, not much activity on his FB page.

 

[Glycon]

That video got me thinking, do we have any grounds to make a citizens arrest on our PACE trial authors ?

Well... Given that everyone involved seems to be lawyering up...

 

[slysaint]

I doubt it; it's not a crime to change your protocol to make things look better, just bad behaviour. But it made me smile.

But I wonder if the participants whose condition was made worse have any recourse?
edited.

 

[worldbackwards]

But I wonder if the participants whose condition was made worse have any recourse?
Similarly, those who funded the project (ie mostly the taxpayers). Maybe one for the Taxpayers Alliance?

If the Taxpayers Alliance gave a shit about anyone apart from their wealthy donors perhaps. They'd use it as a reason to call for the abolition of the NHS.

 

[Esther12]

As people were commenting on his videos, I thought I'd post this tweet:

https://twitter.com/i/web/status/779038567863431168

I'm extra broke at the moment, and don't know if a documentary would be a priority for charity anyway, but I'd like to see a good documentary on changing attitudes to Tatchell.

 

[CFS_for_19_years]

https://twitter.com/i/web/status/779735995809947648

 

[Esther12]

https://twitter.com/i/web/status/779735995809947648

That one's very similar to his first. Really good to have our concerns being promoted like this to those outside the ME/CFS world. I expect that the first one getting 150 retweets with @QMUL tagged in would not have encouraged them to appeal the tribunal judgement.

 

[JayS]

He doesn't give up:

Neither does she.

https://twitter.com/i/web/status/779036589783736320

 

[Esther12]

Neither does she.

https://twitter.com/i/web/status/779036589783736320

Some of those bad science people were an interesting education in how many 'skeptics' are really just looking for a form of authority to mindlessly trust. It's a bit worrying.

 

[user9876]

Some of those bad science people were an interesting education in how many 'skeptics' are really just looking for a form of authority to mindlessly trust. It's a bit worrying.

I think many of them are basically anti industry as the oppose pharma and alternative health industries not bad science,

 

[JayS]

Yeah, well, here's a discussion amongst people who claim to be studying to be doctors. Post #10 is a pip.

http://forums.studentdoctor.net/thr...n-chronic-fatigue-as-study-indicated.1222991/

 

[Esther12]

https://twitter.com/i/web/status/782136773824700417

A new one. With all that's been going on I think that I may have missed some too.