Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Persistent Immune Activation in CVID and the Role of IVIg in its Suppression

Discussion in 'Other Health News and Research' started by Ema, Sep 3, 2015.

  1. Ema

    Ema Senior Member

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    As it becomes more and more likely that MECFS is about inflammation and inappropriate immune system activation rather than pathogen load per se, this research on IVIG in CVID looks to be extremely applicable.

    Full text here:

     
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  2. minkeygirl

    minkeygirl But I Look So Good.

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    Ah but then you have to get a doc with a brain to RX it.
     
  3. Ema

    Ema Senior Member

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    And an insurance company to pay for it...even more unlikely unfortunately at least until more/better studies are done.
     
  4. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    I think theres more an autoinflammatory aspect of cfsme more so than autoimmune which is commonly mentioned. Autoinflammatory diseases seem to have issues with their innate immune system causing systemic inflammation which seems to happen in many cfsers where autoimmune have more issues with adaptive immunity??
     
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  5. anilla

    anilla

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    hi everyone,
    i'm new here. I have both diagnosed ME and diagnosed CVID. i get IVIg infusions every four weeks. they help a little with the fatigue, but not a lot. the only thing the infusions really help me with is not getting infections.
     
  6. valentinelynx

    valentinelynx Senior Member

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    I have CVID that developed in recent years, as a consequence of whatever ME/CFS/Lyme/Bartonella has been doing to my body for the past 24 years. I also have several odd autoantibodies. My very smart persistent doctor has convinced the insurance companies to allow me to receive IVIG. Unfortunately I probably need more than they will allow to adequately treat the autoimmune issues. But at least it is helping my immune system to function.
     

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