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Peripheral Neuropathy

Discussion in 'Peripheral Neuropathy' started by Nielk, Aug 14, 2012.

  1. Nielk

    Nielk

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    Has anyone experienced peripheral neuropathy? Is it part of Chronic Fatigue Syndrome?

    I have been feeling numbness and tingling in hands, feet, lips and tongue for the past 2 months.

    I had a nerve conductivity test done on my legs and it showed nerve damage. The doctor was surprised that I don't suffer from Diabetes (which I don't) because this is consistent with patients suffering from Diabetes.

    I'm not sure if I should attribute this to my CFS or if I should look for another cause. In the meantime I'm scheduled for an MRI of the brain and neck tomorrow.
     
  2. lansbergen

    lansbergen Senior Member

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    I have

    By which definition?
     
  3. Nielk

    Nielk

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    To be honest? I'm not sure. This is what I know about it.

    What is Peripheral Neuropathy?

    Damage to the peripheral nervous system interrupts communication between the brain and other parts of the body. This can impair muscle movement, prevent normal sensation in the hands and feet, and cause different feelings including numbness, tingling, cold and pain.
    So all the strange feelings, you can experience from peripheral neuropathy aren’t just imagined. The nerves in your feet can become diseased or damaged as a result of other ailments such as diabetes.
     
  4. Nielk

    Nielk

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    Here is more from National Institute of Neurology and Stroke:


    What is peripheral neuropathy?


    Peripheral neuropathy describes damage to the peripheral nervous system, the vast communications network that transmits information from the brain and spinal cord (the central nervous system) to every other part of the body. Peripheral nerves also send sensory information back to the brain and spinal cord, such as a message that the feet are cold or a finger is burned. Damage to the peripheral nervous system interferes with these vital connections. Like static on a telephone line, peripheral neuropathy distorts and sometimes interrupts messages between the brain and the rest of the body.
    Because every peripheral nerve has a highly specialized function in a specific part of the body, a wide array of symptoms can occur when nerves are damaged. Some people may experience temporary numbness, tingling, and pricking sensations (paresthesia), sensitivity to touch, or muscle weakness. Others may suffer more extreme symptoms, including burning pain (especially at night), muscle wasting, paralysis, or organ or gland dysfunction. People may become unable to digest food easily, maintain safe levels of blood pressure, sweat normally, or experience normal sexual function. In the most extreme cases, breathing may become difficult or organ failure may occur.
    Some forms of neuropathy involve damage to only one nerve and are called mononeuropathies. More often though, multiple nerves affecting all limbs are affected-called polyneuropathy. Occasionally, two or more isolated nerves in separate areas of the body are affected-called mononeuritis multiplex.
    In acute neuropathies, such as Guillain-Barré syndrome, symptoms appear suddenly, progress rapidly, and resolve slowly as damaged nerves heal. In chronic forms, symptoms begin subtly and progress slowly. Some people may have periods of relief followed by relapse. Others may reach a plateau stage where symptoms stay the same for many months or years. Some chronic neuropathies worsen over time, but very few forms prove fatal unless complicated by other diseases. Occasionally the neuropathy is a symptom of another disorder.
    In the most common forms of polyneuropathy, the nerve fibers (individual cells that make up the nerve) most distant from the brain and the spinal cord malfunction first. Pain and other symptoms often appear symmetrically, for example, in both feet followed by a gradual progression up both legs. Next, the fingers, hands, and arms may become affected, and symptoms can progress into the central part of the body. Many people with diabetic neuropathy experience this pattern of ascending nerve damage.
    .
     
  5. alex3619

    alex3619 Senior Member

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    Sing, Snowdrop and Nielk like this.
  6. Nielk

    Nielk

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    Thank you Alex for directing me to your thread.

    You mention warm water relief. When I'm in a warm water pool, all these symptoms are alleviated. Too bad I'm not a fish.:confused:
     
  7. lansbergen

    lansbergen Senior Member

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    I meant CFS definition.
     
  8. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    I have PN which is part of my Autonomic Neuropathy (Dysautonomia/POTS.)

    Even if you are not diabetic you can be sensitive to glucose levels. My integrative doctors have me on a diet of no or low sugar, no bad carbs, and a lot of nutritious food. That is half of my answer. The other half is adding the correct supplements to heal and regenerate the nerves that are not healthy. This works for me.

    Most doctors test glucose and do not test A1c, you do both. Then if the numbers are good, that is great, but you have to still change the diet and add all of the supplements. These work together. Most Doctors do not know how to heal the nerves, but it can be done.
     
  9. Tammy

    Tammy Senior Member

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    Neilk, I've had my share of very strange neurological symptoms.....but mostly in the first seven years of the illness. I experienced numbness that first started around my temple area and around the lips....then areas of my back...........then spreading to my entire body! It scared the hell out of me............I went to 5 different neurologists and they never could find anything. I don't have these symptoms anymore but they sure can be unnerving (no pun intended). Some of my symptoms were just so bizarre.......I really thought that something would show up on the MRI of brain.............but NOTHING. Tammy
     
  10. erist

    erist

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    Nielk: numbness, tingling, burning, pain, itching and loss of sensation in extremities are also very common in withdrawal from long-term benzo use.
     
  11. Ocean

    Ocean Senior Member

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    I have experienced it off and on, the tingling and numbness. Not sure what it's from.
     
  12. Nielk

    Nielk

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    Right, I thought about that but,

    #1 the issue is getting worse and worse as time is elapsing
    #2 would this explain the nerve damage in my legs? (shown on the nerve conductivity test)

    I know that Benzo withdrawal can have strange effects but, I'm in doubt as to put the blame of everything that I will be feeling for the next year on the fact that I withdrew from Benzos although maybe I'm wrong?
     
  13. richvank

    richvank Senior Member

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    Hi, Neilk.

    Possible causes are deficiencies in one or more of the B-complex vitamins. B12, B6 and B2 are very important for the nerves.

    Best regards,

    Rich
     
    Nielk likes this.
  14. Nielk

    Nielk

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    Hi Rich,

    Thanks,

    So would a B-complex vitamin as well as B12 be helpful?
     
  15. Crux

    Crux Senior Member

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    Hi Nielk;

    When I had numbness and tingling of nerves in the hands, feet, lips, and tongue, I was in an advanced state of B12 deficiency. It was very distressing.

    I'm not sure, but have you had trouble adjusting to the B12 protocols here?

    I found that adding a Zinc supplement to the mix helped me tolerate the higher dosages of B12 and Folate. I no longer get headaches, anxiety, insomnia, and constipation as a side-effect from the B12/folate.
     
  16. richvank

    richvank Senior Member

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    Hi, neilk.

    Maybe. A more complete methylation protocol might work better, though.

    Best regards,

    Rich
     
  17. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    B vits are very important. You do need to watch the amount of B6. It can cause the same problems in higher amounts.:)
     
  18. Tammy

    Tammy Senior Member

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    Rich, I seem to remember something about a connection between glutathione and the myelin sheath that covers the nerves. Tammy
     
  19. August59

    August59 Daughters High School Graduation

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    Here is a link to a doctor that wrote a piece in the Townsend letter about 2 years ago and it looks as if he has expanded it a little for this site, but I thought it was well written and what he wrote made a lot of sense because he explains his reason for chosing these supplements. His name is Dr. John Hahn DPM ND:

    http://www.podiatrytoday.com/article/5254?page=4

    Here is the article he wrote for the Townsend Letter:

    http://www.biomedsearch.com/article...diabetic-peripheral-neuropathy/220641766.html
     
  20. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    There are good supplements I take. Some are in that article. The article didn't list Benfotiamine, important. Also, B6 toxicity is not rare like it said. Doesn't take much really.
     

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