1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The Pathway to Prevention (P2P) for ME/CFS: A Dangerous Process
Gabby Klein gives an overview of the P2P process, shedding light on the pitfalls with advice as to what we can do in protest ...
Discuss the article on the Forums.

Peptide T for XMRV

Discussion in 'XMRV Testing, Treatment and Transmission' started by julius, Feb 20, 2010.

  1. Forebearance

    Forebearance Senior Member

    Messages:
    390
    Likes:
    112
    Great Plains, US
    That is wonderful news, Rrrr! Thank you for sharing that with us!
    Forebearance
     
  2. starryeyes

    starryeyes Senior Member

    Messages:
    1,513
    Likes:
    4
    Bay Area, California
    This is awesome news! I'm quite concerned about treatments because so many of us are unable to tolerate medications.
     
  3. My name is Mark Lloyd-Fox. I am VP of Global Partnerships and Coalitions at RAPID Pharmaceuticals, AG, which is developing monomeric DAPTA (an active 3rd generation proprietary formulation of Peptide T) for HIV disease. The recent discovery that XMRV is the causative agent of CFS provides a scientific rational for the fact that government studies many years ago found profound neurocognitive improvements in CFS patients, because this virus is related to HIV. RAPID is now studying whether monomeric DAPTA can successfully block the XMRV virus in the same way that it works in HIV in the test tube. RAPID is interested in organising FDA approved, controlled clinical trials of monomeric DAPTA for CFS as soon as a clear mechanism of action has been demonstrated and funding for this use has been secured. Some past clinical trials of Peptide T failed because it cannot be made into a durable formulation (beware of internet offers to purchase Peptide T- only monomeric DAPTA has proven bioactivity by a patented technology developed by Drs. Pert and Ruff for RAPID which they helped found). I travel throughout the US and Europe for RAPID and would be delighted to meet any interested parties who feel that they can contribute to the scientific study.
     
  4. aquariusgirl

    aquariusgirl Senior Member

    Messages:
    948
    Likes:
    91
    volunteers for clinical trials?

    [ I travel throughout the US and Europe for RAPID and would be delighted to meet any interested parties who feel that they can contribute to the scientific study.[/QUOTE]

    Hi Mark
    Are you saying you would like to recruit CFS patients for possible future clincial trials using your version of Peptide T?

    Thanks for clarifying.

    AQ
     
  5. Please see Dr Candace Pert Dr Mike Ruff RAPID Pharmaceuticals
     
  6. Yes AQ, that would be part of it. We are essentially peptide specialists with all of our scientific and financial resources vested in our HIV therapy. We have other drug candidates for other conditions using the same technology and CFS is a primary next step for RAPID. We are currently researching possibilities within the world of CFS for suitable scientific specialists and funding partners so that we can gear up to effectively address CFS using this remarkable peptide.
    MLF.
    PS. I am also Aquarius. Thanks for your interest. I am new to this form of communication but will do my best to keep this site informed of developments.
     
  7. I just thought that I should be perfectly clear that RAPID is NOT recruiting patient volunteers or even taking names until more pre-clinical data has been done and funding is in place.
     
  8. Rrrr

    Rrrr Senior Member

    Messages:
    1,397
    Likes:
    264
    Hi Mark,

    Given your last statement, that RAPID is not recruiting patient volunteers at this time, please let us know how we can help you or what you are offering or suggesting. I would like to do whatever I can to assist RAPID in the process of developing drugs to treat xmrv and in conducting drug trials. Do you have a phone number we can reach you at, or an email? And can you clarify what it is you are offering/suggesting here?

    Thank you for all the work you have done to date! Candace Pert is one dedicated woman, and I assume her staff is as well. So thank you.

    Rrrr
     
  9. julius

    julius Watchoo lookin' at?

    Messages:
    785
    Likes:
    5
    Canada
    Thanks Mark for keeping us informed. I hope your work results in safe and effective new treatments for CFS.
     
  10. Rrrr

    Rrrr Senior Member

    Messages:
    1,397
    Likes:
    264
    Mark,

    First, I assume you are in touch with Dr. Judy Mikovits at Whittmore Peterson Institute. They expressed an interest in doing a trial with Peptide T re: XMRV.

    Separately, might you be looking for Infectious Disease (ID) doctors who can work with RAPID? I will soon be the patient of an ID doctor at very reputable and well known hospital, Dr. Donna Felsenstein of Mass General Hospital. She is currently conducting an XMRV study. I am not sure who funded it. But perhaps she can be interested in working with RAPID on a study re: DAPT. I have yet to meet her, but perhaps you may want to reach out to her.

    Rrrr
     
  11. julius

    julius Watchoo lookin' at?

    Messages:
    785
    Likes:
    5
    Canada
    Rrr,

    Check out post #8 on this thread. I transcribed a small part of the talk that Dr Mikovits gave in which she mentioned Peptide T. It was, in fact, Dr Pert who contacted Judy regarding PT. I believe they are already co-operating on this.
     
  12. Rrrr

    Rrrr Senior Member

    Messages:
    1,397
    Likes:
    264
    Thanks. How the heck did I miss that earlier? Thanks again!
     
  13. Forebearance

    Forebearance Senior Member

    Messages:
    390
    Likes:
    112
    Great Plains, US
    Dear Mark,

    Thank you so much for posting on this forum and telling us what is going on within RAPID. I really hope that you get your pre-trial data and your funding in place soon! I can't wait to find out what happens in the clinical trials of monomeric DAPTA on CFS patients. Thank you for wanting to help us!

    Forebearance
     
  14. redo

    redo Senior Member

    Messages:
    830
    Likes:
    89
    How's the progress going on this?
     
  15. Rrrr

    Rrrr Senior Member

    Messages:
    1,397
    Likes:
    264
    i was in touch with RAPID recently and they are very interested in xmrv. that is all i know for sure.
     
  16. xrayspex

    xrayspex Senior Member

    Messages:
    659
    Likes:
    72
    u.s.a.
    peptides

    Hey I am reading a book by Candace Pert right now and am reintrigued about peptide t and her studies. reminds me of burzinsky, but she has more obvious credibility with NIH background.

    anyone hear anything about this peptide or other ones avail?
     
  17. Robert Doms

    Robert Doms

    Messages:
    1
    Likes:
    0
    Peptide T has no antiviral activity, either against HIV or XMRV. Its purported antiviral activity was never confirmed by other scientists, and so it is not being developed as a drug.
     

See more popular forum discussions.

Share This Page