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PEM related to neck stiffness and mental confusion

J

JohnnyThunders

Messages
8
yesterday I was feeling just fine, hanging out with friends and enjoing the nice weather outside.
came home had somthing to eat and all of a sudden my neck and body got all stiff and felt like my brain was just not right. very hard to socialise and anxious feeling too.
i've been havng this problem for years where i'm all fine, then go outside do something that's maybe a little straining on the body, but not too much, and after a short period of resting the PEM sets in.
if there's one thing i've noticed over the years this feeling of PEM always goes along with a very stiff neck and some feeling like my brain is infected or just not right. hard to describe. it feels more mental than physical in that way I guess. just wondering if anyone could relate ? btw one good days I could do a decent amount of physical straining on the body and be fine. so it feels very random. now i'm stuck at home again cause I feel too confused and unfocused to go outside. btw these problems started getting worse after seeing a chiropractor about 5 or 6 years ago. so the neck cracking thing always stuck with me like something that could be important.
 
DoggerFisher

DoggerFisher

Senior Member
Messages
152
Hi @JohnnyThunders I get this too. Always have. I check my diaries from previous relapses thinking it's new but it's not. Brain and neck feel inflamed and stiff and it goes down left arm too. Yes there's nothing wrong as usual! This was first marked sign of my crash after 10 years of being roughly ok. Thought it was just cricked neck haha! No....
 
E

erin

Senior Member
Messages
885
I can relate to this. Definitely.

The brain symptom that you're describing is like this with me; as if I have covered in a mesh or I have sprinkled with thick liquid that makes me to move slower than normal and I'm all fuzzy there is something between me and the outside world, straining me slowing me. It is very difficult to talk to other when I have this.
 
J

JohnnyThunders

Messages
8
ok wow I didn't expect people to be able to relate to this so much, I always assumed PEM was more about physical fatigue like an old person would have after going for a run or something.
another strange thing is, when the PEM goes away and I feel 'relatively' fine again. it's always after having a good night's sleep. there's literally nothing else that has helped. from the moment I wake up I can tell it's gonna be a good day or a shitty one. @DoggerFisher I should keep a diary too probably but personality wise i'm just too inconsistent with things like that :p
 
DoggerFisher

DoggerFisher

Senior Member
Messages
152
@DoggerFisher I should keep a diary too probably but personality wise i'm just too inconsistent with things like that :p[/QUOTE]
I've got f*** all else to do :D
I kept really detailed diaries years ago of symptoms and scored all my activities in minus and pluses but I threw them all out when I thought I was done. Oops! :cry:
 
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