The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

Pediatric Primer

Discussion in 'Latest ME/CFS Research' started by Denise, Jun 19, 2017.

  1. Dolphin

    Dolphin Senior Member

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    Makes sense. I remember when the Barts CFS service (presumably Peter White) objected to such a suggestion in the draft NICE guidelines in 2006
     
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  2. Dolphin

    Dolphin Senior Member

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    Nice to see patients being given permission to use energy on pleasurable activities rather than just on academic activities.
     
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  3. Dolphin

    Dolphin Senior Member

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    This is in contrast to some of what the biopsychosocial school write which sort of makes out that patients are super wimps who are not willing to put up with any symptoms.
     
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  4. Dolphin

    Dolphin Senior Member

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    Makes sense
     
  5. Dolphin

    Dolphin Senior Member

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  6. Dolphin

    Dolphin Senior Member

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    This contrasts with the advice from the biopsychosocial school which is generally to recommend against naps.
     
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  7. Dolphin

    Dolphin Senior Member

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    Good that the possibility of hypersomnia is mentioned
     
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  8. Dolphin

    Dolphin Senior Member

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    Good
     
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  9. Dolphin

    Dolphin Senior Member

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    I'm not convinced this is evidence of an abnormal reaction. I think quite a lot of people have their adrenal function suppressed by moderate dosages of cortisone.
     
  10. Dolphin

    Dolphin Senior Member

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  11. Dolphin

    Dolphin Senior Member

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    The wording is slightly unclear but I would be surprised if only 10 to 30% of paediatric patients had myalgia. The percentages in adults are much higher. Myalgia was arguably my chief symptom as a teenager.
     
    Last edited: Jul 24, 2017
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  12. Denise

    Denise Senior Member

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    Okay - here's another inconsistency in the primer because the diagnostic worksheet (p.7) says "Rarely is pain absent"
     
  13. Dolphin

    Dolphin Senior Member

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    I'm sceptical about some of these helping pain so good to see the last sentence.
     
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  14. Denise

    Denise Senior Member

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    Based on the reference, I think the quote about pain in 10-30% of pediatric patients is saying that fibromyalgia as a co-morbidity occurs in just 10-30% of young patients. But as @Dolphin says, the wording is unclear.
     
  15. Dolphin

    Dolphin Senior Member

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  16. Dolphin

    Dolphin Senior Member

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    A lot of good points here.
     
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  17. Dolphin

    Dolphin Senior Member

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    Evidence it improves function = ?

    Good
     
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  18. Dolphin

    Dolphin Senior Member

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  19. Dolphin

    Dolphin Senior Member

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    While CBT and graded exercise therapy can involve some pacing, the main proponents would be against the energy envelope model.
     
  20. Dolphin

    Dolphin Senior Member

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    Good

    Interesting


    I'm not sure about this.
     
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