Allyson
Senior Member
- Messages
- 1,684
- Location
- Australia, Melbourne
I know my son does not have Marfran syndrome. Both my son and I have a mild case of scoliosis. However, he is 5'5' and does not have long limbs. We come from a long line of short people. There could be something wrong with the lymphatic system or pituitary. It could be something that runs in out family. When my dad started High School he was 4'11''. That's pretty small. But we are also part Native American and where I come from, most of the Native Americans are small.
not sure where you are in the world Mya but this is intersting on missed EDS Dx - also inlcudes upright MRIs to measure postural drop iin blood flow
This young first noticed symptoms fo her congenital condition whne she wasat university.
http://www.thewhig.com/2013/06/07/a-systemic-lack-of-awareness-of-eds
A