• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

PatientsLikeMe doing a CFS/FMS survey for Petrie (major psychobabbler)

leela

Senior Member
Messages
3,290
I asked PLM if they had asked the survey participants by which definition they were diagnosed and explained the fake definitions.

Dr. Wicks replied that no they didn't and that he was sure i'd agree that not asking was the right thing to do!

.

:confused:?!?!!?:headache:
 

justinreilly

Senior Member
Messages
2,498
Location
NYC (& RI)
In response to another patient's questions and comments i told them that PEM distinguishes ME and FM and that they shouldn't exercise until they are mostly better and that cortef helps by lowering inflammation.

the site said i couldn't make recommendations based on the science, only my personal experiences.

God help us!!