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Patients with medically unexplained physical symptoms experience of receiving treatment in a primary

Discussion in 'Latest ME/CFS Research' started by Dolphin, Aug 4, 2015.

  1. Dolphin

    Dolphin Senior Member

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  2. Dolphin

    Dolphin Senior Member

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    Treatments examined

    The results were pretty poor but they have been buried somewhat:

    They used various questionnaires
    but generally bury results in the text. There are no statistical tests done nor means or medians given for before and after.
     
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  3. Dolphin

    Dolphin Senior Member

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    (Not that exciting)
    The preceeding paragraph was about medically unexplained symptoms and focused on CFS, IBS and Fibromyalgia so the impression is that's the sort of thing that in mind with this statement.
     
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  4. Dolphin

    Dolphin Senior Member

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    I didn't know about the underlined bit:

     
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  5. Dolphin

    Dolphin Senior Member

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    Not the ideal situation for such research as the interviewer was a CBT therapist herself:
     
  6. Dolphin

    Dolphin Senior Member

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    I would say: they're not going to find that out on such a course.
     
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  7. Dolphin

    Dolphin Senior Member

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    Shows they are vulnerable.
     
  8. Dolphin

    Dolphin Senior Member

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    Shows they could be misled by somebody who is seen as an expert.
     
  9. Dolphin

    Dolphin Senior Member

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  10. Dolphin

    Dolphin Senior Member

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  11. Dolphin

    Dolphin Senior Member

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    I wonder would they have felt as validated if they had known the therapists real views about their condition.
     
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  12. Dolphin

    Dolphin Senior Member

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    As mentioned above, the quantitative data is presented in a very unsatisfactory way.

     
  13. SOC

    SOC

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    Reminds me of an old saying: The operation was a success, but the patient died.

    Beautiful example of CYA denial of reality in the medical (in this case psychiatric) world.
     
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  14. Sean

    Sean Senior Member

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    Complicated way of saying it didn't work.
     
    Last edited: Aug 5, 2015
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  15. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    But never forget, it's the ME community that harms patients.

    I blame PR.
     
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  16. Simon

    Simon

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    Thanks for doing the hard work, @Dolphin
    "What I am down about if I am to be totally honest is the fact that they are not getting to the bottom of what’s wrong. (11)"
    Fair point.

    Also they didn't have a no-treatment control group. But more people reporting worsening than improving does suggest they need a different approach. So presumably they'll rip it up and start again?
     
    Last edited: Aug 5, 2015
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  17. alex3619

    alex3619 Senior Member

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    This is pretty much what we suspect about the PACE trial. Not much improvement, some harm, but some patients report they feel better about things.
     
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  18. Bob

    Bob

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    I was thinking exactly the same! Very likely, I'm sure! (But I don't think I'll put any money on it!)

    But to give them their credit where it's due, the authors have been fairly honest in the abstract: "Participants generally reported a positive experience of treatment and felt better able to cope with their symptoms, although treatment did not necessarily result in reliable change in symptoms..."

    If the PACE authors spoke in that language (i.e. that patients "felt better able to cope with their symptoms") and were that honest (i.e. "treatment did not necessarily result in reliable change in symptoms"), then I wouldn't have much of a problem with them.

    Or am I giving too much credit to these authors?
     
  19. Dolphin

    Dolphin Senior Member

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    You won't be surprised to hear that that wasn't their conclusion.
     
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  20. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    We are much better off playing relaxing computer games, cuddling/playing with our pets, listening to uplifting music than all this idiot SH*T!
    Had to deal with pain and fear all my life, it's important for people to "flow" naturally into things that revive the spirit, that aren't stressful but uplift. Psychological melancholia can happen to anyone, we've all got limits and variations in what we can and cannot take.
    Lot of "survivors" have already figured such stuff out without the need for a psychologist
    alas a great many others have not, and "self medicate" using alcohol, other drugs, violence, self harm or self destruction.

    We live in societies that have been deliberately turned in on themselves, to promote selfish hate war, violence, inhumanity, greedy etc, this has greatly worsened things
    living in poverty, slums etc has hellish effects, but so does a desolation of the soul.
    Crazy at it may seems, to me, the way CBT etc has been pushed is more utter perversion and destruction of Humanity, on all sides
    not listening to patients, warping potentially useful services to fill a DEMAND for control
    denigration into uber/untermensch

    and a push from the top to deny acceptance of the COLOSSAL damage to Human health our mad world has become
    ever seen "DUNE"?
    Earth = Giddi Prime, we've taken everything to extremes, polluted hell out of it, and our selves and denied the "spiritual" (and I don't mean that in the simple, crass religious sense that it has been abused for centuries, but in far broader one).

    So, of course we have gross physical and mental health problems running rampant in our messed up cultures.
     
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