Ember, earlier in this thread you cited Invest in ME in support of the ICC, and indeed the ICC primer was distributed to conference attendees. But I believe you are misrepresenting the ICC authors and Invest in ME when you cite their support for the ICC as a reason to reject this petition and letter. I will be trying to get comment from ICC contributors and authors on this matter in due course, but if you can get a quote from any of them opposing the letter to the DHHS I'd be most interested to see that. Meanwhile, I do have some quotes from the IiME conference journal from last week which I think illustrate that those supporting the ICC are not also opposing use of the CCC: Page 6: "So we need...to adopt the latest ICC or CCC criteria for ME - for research and for diagnosis" Page 21 (titled Guidelines): "Invest in ME support the use of either the so called Canadian Consensus Criteria (CCC) or the later version of these guidelines the International Consensus Criteria (ICC). For some time Invest in ME have been responsible for distributing printed copies of the Canadian Consensus Guidelines in the UK...The Canadian guidelines were recently endorsed by the US CFS Advisory Committee. More recently the International Consensus Guidelines (ICC) has been produced and is available in printed form from Invest in ME. Contact firstname.lastname@example.org to order." With this in mind I would be interested if you could supply a referenced quote from any ME, ME/CFS or CFS organization, research or physician saying that they are opposed to the use of the CCC. The quotes from the ICC itself do not indicate that, despite your interpretation of them, and I do not believe that any of these organizations or individuals would support the line you are taking on this.