1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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First Direct Evidence of Neuroinflammation - 'Encephalitis' - in ME/CFS
A small study with just nine patients has captured the attention of patients and researchers alike after reporting direct evidence of inflammation in the brain of ME/CFS patients. The finding was one of the highlights picked out by Professor Anthony Komaroff in his IACFS/ME...
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Patients Share DNA for Cures

Discussion in 'Other Health News and Research' started by Waverunner, Sep 17, 2013.

  1. Waverunner

    Waverunner Senior Member

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    Sasha likes this.
  2. Sparrowhawk

    Sparrowhawk Senior Member

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    West Coast USA
    I believe that is part of Dr. Kogelnik's research agenda at OMI -- not just genetics but a bank of other diagnostic possibilities like toxin assays?
  3. Valentijn

    Valentijn Activity Level: 3

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    Amersfoort, Netherlands
    A lot of us have been sharing our 23andMe results in the SNP subforum. There's a thread comparing rare allele data at http://forums.phoenixrising.me/index.php?threads/rare-allele-data.23978/ and my fiance and I have created a much easier and faster rare allele analysis program which is discussed at http://forums.phoenixrising.me/index.php?threads/download-for-rare-snp-analysis.24983
    Little Bluestem and Waverunner like this.
  4. cigana

    cigana Senior Member

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    UK
    I've tried to encourage people to share results before, but with no luck. It is a shame, I think there could be game-changing discoveries to be made by just analysing large enough data sets. It's pretty much the only thing we could do to help ourselves.
  5. Waverunner

    Waverunner Senior Member

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    May I ask which results you were referring to? Whole genome sequencing is still pretty expensive (3k to 5k?).
  6. cigana

    cigana Senior Member

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    UK
    Anything and everything, including just personal information like location, disease history etc.
    I would devote time to creating a database if I could think of a way to encourage people to use it...

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