1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Patients Share DNA for Cures

Discussion in 'Other Health News and Research' started by Waverunner, Sep 17, 2013.

  1. Waverunner

    Waverunner Senior Member

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    Sasha likes this.
  2. Sparrowhawk

    Sparrowhawk Senior Member

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    West Coast USA
    I believe that is part of Dr. Kogelnik's research agenda at OMI -- not just genetics but a bank of other diagnostic possibilities like toxin assays?
  3. Valentijn

    Valentijn Activity Level: 3

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    Amersfoort, Netherlands
    A lot of us have been sharing our 23andMe results in the SNP subforum. There's a thread comparing rare allele data at http://forums.phoenixrising.me/index.php?threads/rare-allele-data.23978/ and my fiance and I have created a much easier and faster rare allele analysis program which is discussed at http://forums.phoenixrising.me/index.php?threads/download-for-rare-snp-analysis.24983
    Little Bluestem and Waverunner like this.
  4. cigana

    cigana Senior Member

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    UK
    I've tried to encourage people to share results before, but with no luck. It is a shame, I think there could be game-changing discoveries to be made by just analysing large enough data sets. It's pretty much the only thing we could do to help ourselves.
  5. Waverunner

    Waverunner Senior Member

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    May I ask which results you were referring to? Whole genome sequencing is still pretty expensive (3k to 5k?).
  6. cigana

    cigana Senior Member

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    UK
    Anything and everything, including just personal information like location, disease history etc.
    I would devote time to creating a database if I could think of a way to encourage people to use it...

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