Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Patient Perceptions Regarding Possible Changes to the Name and Criteria for CFS - Leonard Jason

Discussion in 'Latest ME/CFS Research' started by Nielk, Sep 20, 2016.

  1. Nielk

    Nielk

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    New study results by Dr. Leonard Jason

    https://www.jscimedcentral.com/FamilyMedicine/familymedicine-3-1090.pdf

    Entire report here
     
    taniaaust1, Dolphin, halcyon and 5 others like this.
  2. Nielk

    Nielk

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    Interesting findings:

     
  3. Dolphin

    Dolphin Senior Member

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    These are the main results:

    Table 3: Opinion of current names.

    Table 4: Opinions of current case definitions
     
  4. taniaaust1

    taniaaust1

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    Sth Australia
    68% I think is a very high rate considering that some who responded may only fit CFS definations and not ME ones so could well be against a change to ME name on that ground out of fear of possibly ending up with no name for their illness.

    I think we have to keep on using the ME till we do win the battle to use this name till the time comes in which they know far more about our illness.

    Dr. Leonard Jason is doing some great research which hopefully will end up really helping us. thanks
     

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