Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

Patience

Discussion in 'General ME/CFS Discussion' started by trickthefox, Jul 6, 2015.

  1. trickthefox

    trickthefox Senior Member

    Messages:
    212
    Likes:
    546
    Brighton
    I don't post very often, but I have been watching these forums for advice, ideas, and how people are responding to certain treatments quite a bit over the years

    Just thought i'd post this to give back!

    Its a song I wrote about living with CFS/ME and filmed just before things got really bad and I had to move back home with my mum to be a full time M.E'er

    Hope you guys like it :)

    Ren

    x

     
    Joh, Antares in NYC, mango and 22 others like this.
  2. Kati

    Kati Patient in training

    Messages:
    5,466
    Likes:
    19,595
    Hi Ren @trickthefox, thank you so much for sharing parts of you, your soul and your music. It touched me deep, and it gave me strength.

    You sound like a great guy.

    Best, Kati
     
  3. Hell...Hath...No...Fury..

    Hell...Hath...No...Fury.. Senior Member

    Messages:
    1,082
    Likes:
    3,396
    UK
    Hi Ren,
    Thanks do much for sharing that. Its a lovely song. :)
     
  4. Tammy

    Tammy Senior Member

    Messages:
    1,078
    Likes:
    1,408
    New Mexico
    Music really is food for the soul..................thank you Ren.:)
     
  5. Kina

    Kina

    Messages:
    10,132
    Likes:
    17,219
    Sofa, UK
    Thanks @trickthefox -- Great song, great words -- very moving.

    Thanks for sharing it with us.:):):hug::):)
     
    Never Give Up, catly and trickthefox like this.
  6. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

    Messages:
    1,218
    Likes:
    4,541
    Hey man!

    This was truly a great great song!
    One for the radio.

    Sucks to hear you had to move home, but with the latest research going on, youll be able to get out to shine with some of that treatment in not too long.

    I sing in a band myself, and i gotta say, it is the music that keeps me sane.

    All the best X
     
    Never Give Up, catly and trickthefox like this.
  7. AaroninOregon

    AaroninOregon noob

    Messages:
    169
    Likes:
    119
    Hippietown
    Never Give Up and catly like this.
  8. catly

    catly Senior Member

    Messages:
    284
    Likes:
    713
    outside of NYC
    Lovely song@trickthefox, left a smile I my face!
     
    Never Give Up likes this.
  9. trickthefox

    trickthefox Senior Member

    Messages:
    212
    Likes:
    546
    Brighton
    Thanks guys :D
     
    Gingergrrl likes this.
  10. *GG*

    *GG* Senior Member

    Messages:
    6,163
    Likes:
    4,768
    Concord, NH
    cool, I like Guns and Roses patience also :)

    GG
     
  11. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

    Messages:
    1,218
    Likes:
    4,541
    Haha thats not the song hes singing man;))
     
    trickthefox likes this.
  12. *GG*

    *GG* Senior Member

    Messages:
    6,163
    Likes:
    4,768
    Concord, NH
    I know, just figured he's a younger lad who might not be familiar with the band/song :)

    GG
     
    trickthefox and Marky90 like this.
  13. Misfit Toy

    Misfit Toy Senior Member

    Messages:
    3,311
    Likes:
    6,962
    USA
    I love it. Thank you for sharing yourself. I love music. This would be great in an ME documentary. Shows resilience and capability in spite of such odds!

    Great stuff.
     
  14. AndyPandy

    AndyPandy Making the most of it

    Messages:
    1,481
    Likes:
    6,671
    Australia
  15. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,579
    Likes:
    24,726
    USA
    Ren, your song is both beautiful and amazing. I just read your story at boy who can't eat and was wondering if you have ever been tested for MCAS or a mast cell disorder (vs IBS and regular food allergies?). Sorry if you already explained it and I missed it!
     
  16. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

    Messages:
    957
    Likes:
    3,955
    As the mother of a son with ME, your song had me s-o-b-b-I-n-g! I was hesitant to show it to my son for fear of making him sad, but I did anyway. He loved it! He found it encouraging and strengthening.

    Thank you!
     
  17. JaimeS

    JaimeS Senior Member

    Messages:
    3,205
    Likes:
    11,822
    Mid-Ohio Valley, United States
    @trickthefox - I was expecting to see something charming, not something so professional-sounding. Your voice is gorgeous and your lyrics are very thoughtful. 'Move not an inch' got me! Keep at it, just as much as you are able!

    -J
     
    trickthefox, Gingergrrl and Kati like this.
  18. trickthefox

    trickthefox Senior Member

    Messages:
    212
    Likes:
    546
    Brighton
    Thank you so much :) :) :) so many kind words it really means a lot to me!!! music is all i did before i got so sick and its nice that even these days now i cant do it very much that i can still get it out there a little bit :) love u guys!
     
    Marky90, *GG*, Sushi and 3 others like this.
  19. *GG*

    *GG* Senior Member

    Messages:
    6,163
    Likes:
    4,768
    Concord, NH
    Love you back bud, hang in there! :thumbsup:

    GG
     
  20. digital dog

    digital dog Senior Member

    Messages:
    605
    Likes:
    927
    Your music is incredible. You are pretty incredible yourself.
    Keep the hope Ren. You shine....gloriously, blindingly, it literally explodes from you.
    I'm speechless to be honest.
     
    Gingergrrl and Kati like this.

See more popular forum discussions.

Share This Page