1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
Discuss the article on the Forums.

Parkinson-like Freezing - Does Anyone Else Get This?

Discussion in 'Neurological/Neuro-sensory' started by kaazoom, Jul 23, 2010.

  1. kaazoom

    kaazoom

    Messages:
    15
    Likes:
    7
    Does anyone else suffer from Parkinson-like freezing? I am not talking about being cold. I am talking about not being able to move, like your feet are glued to the floor. I have been getting this a lot other lately. I'll be walking and suddenly stop and cannot move for a few seconds. At other times I cannot initiate movement, I go to do something, but their is a delay between wanting to move and actually moving.

    Paul
     
  2. camas

    camas Senior Member

    Messages:
    697
    Likes:
    196
    Oregon
    This used to happen to me too. When I described it to my doctor, he suspected that I was having small seizures. I don't know if this was the case, because we never explored it further. The episodes eventually went away on their own. It is a strange sensation to suddenly be 'stuck.'
     
  3. Wonko

    Wonko Senior Member

    Messages:
    627
    Likes:
    104
    England
    yes I've experienced it - in the late 80's it used happen a few times a year for a few years - caused a few bad falls eg having a foot nailed to the ground when going down stairs leads to to a few seconds of entertainment followed by several hours of ouch time

    however such incidents have always been brief - a few seconds afaik - and have decreased in frequency - ie I only remember one such incident in the last 5 years

    doctors (and others) just give me a blank uninterested look on the rare occasions I've mentioned it - including A&E doctors when I've ended up there because of it
     
  4. taniaaust1

    taniaaust1 Senior Member

    Messages:
    8,061
    Likes:
    5,043
    Sth Australia
    Yes.. I had that symptom with the CFS/ME when it came back after a remission of 2-3 yrs.. It came back with a heap of new neuro symptoms and that was just one of them. I was having trouble initiating movement and a real effort to move leg by leg. It was weird as one expects a leg to move when your brain thinks and goes to move it. It was like it was paralysing in walking.

    Im curious about what other neuro symptoms you are currently getting.. as when I had that symptom I also was getting a lot of falling.. I'd fall on just trying to walk around a corner, no turning balance, I was also having periods of leg drag (where one leg would walk but the other ended up dragging behind and not lift) and I also had like parkisons tremors happening (nurses at hospital mistook me for a parkinsons disease patient!). For myself all these symptoms seem to be part of symptom complex i was getting at that point of time.

    If it's CFS/ME it will probably go away sooner or later. (I had thought when I got those symptoms that my nervous system was completely damaged or that i had something other than CFS/ME, these symptoms scared me). I dont have those things happening no more.

    (I also had trouble initating other actions too.. one night i was stuck in my chair all night as I couldnt make my body get up to go to bed. It sucked as I was very tired and wanted to but couldnt move, not due to weakness but just cause my brain couldnt get it to do so). It was like I lost control over my body.
     
  5. taniaaust1

    taniaaust1 Senior Member

    Messages:
    8,061
    Likes:
    5,043
    Sth Australia
    Im curious .. Do you recognise my nic? I used to know someone with either your nic or close to it on youtube 2-3 yrs ago.. I think his name was Paul too. That person used to get terrible body spasms all the time. Is that you? (my current computer cant really get youtube up well).
     
  6. kaazoom

    kaazoom

    Messages:
    15
    Likes:
    7
    Yes, thats me! And I do recognise your nic. :Retro smile:
     
  7. kaazoom

    kaazoom

    Messages:
    15
    Likes:
    7
    One of the first symptoms I had was not being able to initiate movement. I would go to type on my computer keyboard, or to pick something up, but would freeze for a few seconds, the same happens with my speech I go to speak but cannot engage my mouth. I have other symptoms that can look like parkinsonism too, my gait is stiff and sometimes I have a festinating gait, my writing becomes small and spidery after a few sentances as my hand cramps, and I sometimes have a pill rolling tremor. But these symptoms come and go and are just a few of the many neuro-symptoms I get. I have been assured I don't have PD, although I do sometimes wonder.
     
  8. alex3619

    alex3619 Senior Member

    Messages:
    7,498
    Likes:
    11,992
    Logan, Queensland, Australia
    Hi

    One of my uncles probably died from Parkinsons. I don't have typical symptoms, but every now and again I lose the capacity for automatic movement. I have to think through the movement step by step and make my body do it - so my movement becomes jerky and forced. This may or may not be a related thing.

    Bye
    Alex
     
  9. Garfield

    Garfield

    Messages:
    17
    Likes:
    1
    Netherlands
    Hi

    Don't know if it is the same but I sometimes feel there is some kind of gap between my body and my brain, like my body and brain aren't syncronized. Sometimes I literary have to voice out a command to make my body respond to my bain. If it is speech that becomes impaired it's hard, I've found no way to bypass that and feel really locked inside at the times that happens.

    It feels like my brain is losing momentum, freezing up or shuts down because of sheer energy shortage. It definitely is scary!

    There is also parkinson in my family.

    Symptoms come and go but I definitely am scared of the possible neurodegenerative symptoms ME comes with
     

See more popular forum discussions.

Share This Page