1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
No Longer Naive in the Ways of The Beast
After having lived for years with ME/CFS, Jody Smith learned there's more to this beast of an illness than she realized, and that what might help one person may not help others ...
Discuss the article on the Forums.

Paralyzed - How common is it?

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by lnester7, Mar 5, 2014.

?

I get paralyzed Like state

  1. Yes

    33.3%
  2. No

    66.7%
  1. lnester7

    lnester7 Seven

    Messages:
    1,161
    Likes:
    1,029
    USA
    I am awake at first, but then I fall sleep (I think, I loose track of everything) then I wake up or come to.

    By the way the sleep paralysis I had it when I didn't get to stage 4 sleep. Is a good sign of deep sleep quality or sleep deprivation.
    merylg likes this.
  2. SOC

    SOC Moderator and Senior Member

    Messages:
    5,153
    Likes:
    5,969
    USA
    It sounds like (correct me if I'm wrong) that you are ultimately losing consciousness and also (sometimes) losing control of bodily functions. It also seems that you have an aura (you sense it coming) and that it comes on suddenly (within minutes).

    That doesn't sound like PEM to me. Nor does it sound like post-exertional muscle weakness people with ME report.

    If I understand correctly, you are not talking about sleep paralysis, right? This is happening when you are awake and, up to that point, going about your day normally...?

    I strongly suggest having hubby film the whole thing from the aura through until you lose consciousness... and further if you have any movement while you're unconscious... and take it to your doc ASAP.
    Valentijn, rosie26, merylg and 3 others like this.
  3. lnester7

    lnester7 Seven

    Messages:
    1,161
    Likes:
    1,029
    USA
    Yeah I am awake, usually has been overdoing for a while. Sometimes is just I haven't had enough fluids.
    1) I feel numbness in brain and I don't want to talk. When I feel is too much trouble to talk is that I know I am going down.
    2) No matter what I go to the bathroom even if that means I won't make it to the bed, my priority is always to pee.
    3) I assess if I can make it to bed (Upstairs) or need to lay down whereever I am, I need to go to a place with no lights and no Noise, I am more sensitive to noise when I crash. Light is just because I prefer not to.
    4) Once in bed I need to lay flat (I always verify I have drink which I will need once I wake up). I can use a pillow, reclining just makes me sicker. Has to be laying down.
    5)I have no idea usually 2-3 hours have past. Sometimes I just go pee and right back to bed till next day or wake up and drink wait a bit and I go about my night as usual.

    I will get my husband to record me.
    merylg likes this.

See more popular forum discussions.

Share This Page