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ME/CFS and Beating the Clock
For Jody Smith, the ticking of a clock was enough at one time to chase her back to her bed. But with the passage of time, she has been able to reclaim her living room ...
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PANDORA: Feedback to IOM

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Ember, Dec 20, 2013.

  1. Ember

    Ember Senior Member

    P.A.N.D.O.R.A., Inc. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc.
    justinreilly and Firestormm like this.
  2. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

    NYC (& RI)
    Why are they "pleased over-all" and not demanding the contract be halted? Also, what's this about 'look into' Alegria and Mulrow. They never should have been proposed in the first place. How is it not clear that Alegria conflates CFS and Neurasthenia? The other stuff about getting 4 more experts on (and using ME) was very good.

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