Jesse2233
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Several doctors are now using the Cunningham autoantibody panel to establish a case for autoimmunity in ME/CFS patients. These same autoantibodies have been linked to PANDAS/PANS, a post-infectious autoimmune disease affecting children.
A treatment protocol has emerged for PANDAS that mirrors some of the more successful ME/CFS treatments. The difference seems to be that more mainstream doctors are willing to accept and implement these treatments for PANDAS than for ME/CFS. Furthermore these treatments are implemented in a systematic and complementary way thus improving the outcomes; e.g. underlying infection is treated at the same as autoimmunity.
You will find many PANDAS communities with stories of recovery from these protocols. I wonder if the same might be true for ME/CFS (at least a subset) if these same treatments were more regularly used.
Treatment protocol:
A treatment protocol has emerged for PANDAS that mirrors some of the more successful ME/CFS treatments. The difference seems to be that more mainstream doctors are willing to accept and implement these treatments for PANDAS than for ME/CFS. Furthermore these treatments are implemented in a systematic and complementary way thus improving the outcomes; e.g. underlying infection is treated at the same as autoimmunity.
You will find many PANDAS communities with stories of recovery from these protocols. I wonder if the same might be true for ME/CFS (at least a subset) if these same treatments were more regularly used.
Treatment protocol:
- Antibiotics: penicillin, amoxicillin, erythromycin, azithromycin, and clindamycin
- Immunomodulation: IVIG, plasmapheresis, prednisone, rituximab, cellcept, and cyclophosphamide
- Supportive: CBT, antidepressants
- Anti-Dopamine Receptor D1
- Anti-Dopamine Receptor D2L
- Anti-Lysoganglioside GM1
- Anti-Tubulin
- Mycoplasma pneumonia
- Streptococcus pyogenes
- Various strains of Lyme
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