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Graham McPhee spells out some of the cold, hard facts about the dismal state of ME research and politics, and has some suggestions as to what we can do about it ...
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Pain of illness that wipes out energy

Discussion in 'General ME/CFS News' started by Ember, May 14, 2013.

  1. Ember

    Ember Senior Member

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    http://www.yorkshireeveningpost.co....in-of-illness-that-wipes-out-energy-1-5664035

     
    anna8 and Valentijn like this.
  2. ukxmrv

    ukxmrv Senior Member

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    Pity about the plug for Action for ME at the end. They are part of the problem patients face in the UK.
     
  3. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    What do you think of this video?:



    GG
     
  4. ukxmrv

    ukxmrv Senior Member

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    I think that looks like Nicky Strong who is a Trustee of the MEA.

    I'm aware of the protest (if that is what you are asking) http://me-alivingdeath.org.uk/

    It's not organised by AFME. They just seem to be jumping on to someone else's bandwagon. Every now and then they produce something good and then go back to be terrible the other 99% of the time. Look at their support of the PACE trial, their involvement with the occupational health guideline etc.

    (sorry computer won't let me run videos at the moment, running too slow)
     
  5. Misfit Toy

    Misfit Toy Senior Member

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    ggingues, I like the speaker but to me, the lying down seems a little too much. If I walked by a rally where everyone was lying down, I would think these people that were lying on a dirty street were crazy.
     

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