Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Pain of illness that wipes out energy

Discussion in 'General ME/CFS News' started by Ember, May 14, 2013.

  1. Ember

    Ember Senior Member

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    http://www.yorkshireeveningpost.co....in-of-illness-that-wipes-out-energy-1-5664035

     
    anna8 and Valentijn like this.
  2. ukxmrv

    ukxmrv Senior Member

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    London
    Pity about the plug for Action for ME at the end. They are part of the problem patients face in the UK.
     
  3. *GG*

    *GG* Senior Member

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    Concord, NH
    What do you think of this video?:



    GG
     
  4. ukxmrv

    ukxmrv Senior Member

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    I think that looks like Nicky Strong who is a Trustee of the MEA.

    I'm aware of the protest (if that is what you are asking) http://me-alivingdeath.org.uk/

    It's not organised by AFME. They just seem to be jumping on to someone else's bandwagon. Every now and then they produce something good and then go back to be terrible the other 99% of the time. Look at their support of the PACE trial, their involvement with the occupational health guideline etc.

    (sorry computer won't let me run videos at the moment, running too slow)
     
  5. Misfit Toy

    Misfit Toy Senior Member

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    ggingues, I like the speaker but to me, the lying down seems a little too much. If I walked by a rally where everyone was lying down, I would think these people that were lying on a dirty street were crazy.
     

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