Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Even the ones who don't understand your illness will probably understand "surgery". That tends to elicit a lot of sympathy and people might be more willing to help. It also might help them in understanding how serious the underlying conditions are, to necessitate surgery.They either all work, have CFS and are sick themselves, or don't get my illness and would NEVER help me. This is a lot to think about.
Hey everyone. So, my friend who has the pain pump is telling me that this will stick out on me. Meaning in my stomach. It's inserted under your skin and it's bigger than she had anticipated. This frightens me. She says it changes your appearance for that reason.
I worry if I get better, a guy won't want to date me if he sees it. What should I do? Suffer with pain or have my life back and possibly not be liked by men?
Yikes.
Nielk, I am going to my primary CFS doc today to ask him this. He told me once he would help me if I ever needed surgery with help from nursing, so I am going to look into it today. Trying to line my ducks up. I was reading this forum about what you need to know if you have it and one thing is you need someone to spend the night the first night. So, I have to find out about that. Ugh.
This is why I hate that I was born so late in my parents life. One parent dead, one suffering with dementia, one sibling died and the other sibling is horrid. Both siblings much older than me. Wasn't left with much of a family. I have taken care of my parents in some ways more than they took care of me and for a much longer time. I know I am not the only one who doesn't have much for a family. It sucks.