Misfit Toy
Senior Member
- Messages
- 4,178
- Location
- USA
So, this year has been the WORST year of my life. Out of 43 years (turning 43 in 2 weeks and want to hide or sleep through it), I am DONE.
This summer I was diagnosed with Celiac, Intercostal Neuralgia and in need of IVIG treatment due to low IgG and low IgA.
For the intercostal neuralgia, which is rib pain that was finally diagnosed, I had a nerve block shot about 2 weeks ago. It was supposed to help. Had lidocaine and steroids in it. Ever since, I have been way worse. I mean, way worse. I can't sleep at all. And, the pain is in full force. I have also developed all over body pain. I mean, all over. Fingers, hands, toes, feet, legs, knees.
I am a week late for my period and know that that has something to do with it. I have had a migraine for about a week now which coincides with hormones being a mess. The pain is bad, but what is even worse is the insomnia. I have never had insomnia like this. I get maybe 3 hours a night. That's it.
So, I am going into the pain specialist today and telling him all of this. I am going to ask about a pain pump instillation or PNS. Peripheral Nerve Stimulation.
I just can't see myself living another 40 years like this and unlike many on here, I am not thinking there will be a cure for this thing.
To make myself feel better, I envision drowning myself. Literally tying a boulder or rock to my ankle and plunging into water and drowning, because I refuse this kind of pain, lack of sleep and life. This is no life, this is a LIVING HELL. Like many on here, I am existing at this point. My health has declined so much this year, it's insane. I can't make any plans. NONE.
In the meantime, I am waiting for possible IVIG results to see if I can have that, which will probably take months for Medicare to approve.
This illness and so many illnesses are all "hurry up and wait" illnesses.
I am losing my mind.
This summer I was diagnosed with Celiac, Intercostal Neuralgia and in need of IVIG treatment due to low IgG and low IgA.
For the intercostal neuralgia, which is rib pain that was finally diagnosed, I had a nerve block shot about 2 weeks ago. It was supposed to help. Had lidocaine and steroids in it. Ever since, I have been way worse. I mean, way worse. I can't sleep at all. And, the pain is in full force. I have also developed all over body pain. I mean, all over. Fingers, hands, toes, feet, legs, knees.
I am a week late for my period and know that that has something to do with it. I have had a migraine for about a week now which coincides with hormones being a mess. The pain is bad, but what is even worse is the insomnia. I have never had insomnia like this. I get maybe 3 hours a night. That's it.
So, I am going into the pain specialist today and telling him all of this. I am going to ask about a pain pump instillation or PNS. Peripheral Nerve Stimulation.
I just can't see myself living another 40 years like this and unlike many on here, I am not thinking there will be a cure for this thing.
To make myself feel better, I envision drowning myself. Literally tying a boulder or rock to my ankle and plunging into water and drowning, because I refuse this kind of pain, lack of sleep and life. This is no life, this is a LIVING HELL. Like many on here, I am existing at this point. My health has declined so much this year, it's insane. I can't make any plans. NONE.
In the meantime, I am waiting for possible IVIG results to see if I can have that, which will probably take months for Medicare to approve.
This illness and so many illnesses are all "hurry up and wait" illnesses.
I am losing my mind.