- Messages
- 26
- Location
- California
Reading the comments in the forums I realize my regimen is a bit different, and more focused on making
myself comfortable. I had a very psychologically abusive doctor years back who refused to treat my pain.
She would glare at me if I said that Advil didn't work. Then, a new doctor was transferred to her time
slot, and I went to the office and simply starting crying - I was in such extreme pain from migraines. He told me
he was not afraid to treat pain and gave me a prescription for Vicodan. I subsequently saw an
anesthesiologist with an outpatient pain practice who put me on Fentanyl patches (much better than Vicodan). So, I rarely experience pain any more --- except when one of my doctors put me on Valcyte, or
Famvir. My pain levels then went through the roof and I had to stop. It was so severe that I could not
imagine any dose of Fentanyl that would quell the pain ---- so, that's VERY SEVERE PAIN, and A LOT OF
FENTANYL.
Now, of course, taking Fentanyl patches makes it impossible for me to do low dose naltrexone, a therapy
that is popular with some people. Fentanyl might also suppress the imune system -- good or bad? I'm
not sure.
But although I can't function at the high level I functioned at before, I am not in pain, and I get a full
night's sleep. So many of these posts seem by people absolutely tortured by their disease. Pain is a
common complaint.
Maybe I have resigned myself to this, too readily, and am just determined to be comfortable. But I don't
see ways of escaping this disease this in any meaningful, lasting way. Not for myself at this point in time. So I offer these strategies to others for whom it fits. Find a good pain doctor and get some relief!
California has made it criminal in some cases NOT to treat pain. Yes, I will have to deal
with narcotic addiction if the pain goes away and I need to get off the medication. That
has not happened. But I will deal with that, and get proper medical support when that time
comes.
Rest, get a good night's sleep, boot that pain out of your life! Don't suffer except when
there are no alternatives.
myself comfortable. I had a very psychologically abusive doctor years back who refused to treat my pain.
She would glare at me if I said that Advil didn't work. Then, a new doctor was transferred to her time
slot, and I went to the office and simply starting crying - I was in such extreme pain from migraines. He told me
he was not afraid to treat pain and gave me a prescription for Vicodan. I subsequently saw an
anesthesiologist with an outpatient pain practice who put me on Fentanyl patches (much better than Vicodan). So, I rarely experience pain any more --- except when one of my doctors put me on Valcyte, or
Famvir. My pain levels then went through the roof and I had to stop. It was so severe that I could not
imagine any dose of Fentanyl that would quell the pain ---- so, that's VERY SEVERE PAIN, and A LOT OF
FENTANYL.
Now, of course, taking Fentanyl patches makes it impossible for me to do low dose naltrexone, a therapy
that is popular with some people. Fentanyl might also suppress the imune system -- good or bad? I'm
not sure.
But although I can't function at the high level I functioned at before, I am not in pain, and I get a full
night's sleep. So many of these posts seem by people absolutely tortured by their disease. Pain is a
common complaint.
Maybe I have resigned myself to this, too readily, and am just determined to be comfortable. But I don't
see ways of escaping this disease this in any meaningful, lasting way. Not for myself at this point in time. So I offer these strategies to others for whom it fits. Find a good pain doctor and get some relief!
California has made it criminal in some cases NOT to treat pain. Yes, I will have to deal
with narcotic addiction if the pain goes away and I need to get off the medication. That
has not happened. But I will deal with that, and get proper medical support when that time
comes.
Rest, get a good night's sleep, boot that pain out of your life! Don't suffer except when
there are no alternatives.