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PACE Trial text of joint letter calling for more information, 24 May 2011

Discussion in 'General ME/CFS News' started by Dolphin, May 24, 2011.

  1. Dolphin

    Dolphin Senior Member

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    PACE Trial text of joint letter calling for more information, 24 May 2011

    http://www.meassociation.org.uk/?p=6171

     
  2. Sasha

    Sasha Fine, thank you

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    Excellent, really excellent. It amazes me that in these days of pre-registered, public domain trial protocols, journal referees aren't routinely cross-checking the submitted results against the planned analyses in the protocol.

    That in itself should be newsworthy. I consider it fraud to withhold data on planned primary analyses and present secondary analyses as primary.
     
  3. Enid

    Enid Senior Member

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    Marvellous letter - thanks for posting Dolphin.
     
  4. Snow Leopard

    Snow Leopard Hibernating

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    I would have asked the possibility of a followup study using actometers to compare activity levels to baseline. We have never had long term objective measures of activity levels after CBT/GET and this would be valuable data...
     
  5. Daisymay

    Daisymay Senior Member

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    Very good letter, well done MEA etc but wish MEA had been doing this sort of thing years ago then we would have been in a much better position now!
     
  6. Dolphin

    Dolphin Senior Member

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    Christine Llewelleyn RIP (sp?) did try to set up a petition against the PACE Trial around 2004. However, I think she didn't have enough numbers to make it useful.
     

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