Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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PACE Study is watershed. No fence to sit on now.

Discussion in 'Action Alerts and Advocacy' started by drjohn, Apr 24, 2011.

  1. drjohn

    drjohn Senior Member

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    LETTER, Re: Is exercise always good for the body? (Edinburgh Evening News, 15 April 2011)

    PERMISSION TO FORWARD, USE IN NEWSLETTERS AND RE POST ON FACEBOOK PAGES

    To read a letter from Dr John Greensmith
    click http://mefreeforall.org/wp/re-is-ex...he-body-edinburgh-evening-news-15-april-2011/
    Short link http://tinyurl.com/6j6l8ht

    Any letters in response should be sent to e-mail address
    letters_en@edinburghnews.com

    May I urge as many as are able to send an e-mail and leave the same or a different comment under the article online, bearing in mind that, although there may be some overlap, they can be two quite different readerships. The more of us who do, the better the chance of at least one being published,

    Follow us on Twitter
    http://twitter.com/#!/MeFreeForAllOrg

    Join us for a mix of serious and fun stuff on Facebook
    http://www.facebook.com/profile.php?id=100000948699086#!/profile.php?id=100000948699086

    Cheers
    John
    drjohngreensmith@mefreeforall.org
    Dr John H Greensmith
    ME Free For All. org
     
  2. justinreilly

    justinreilly Senior Member

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    NYC (& RI)
    Thanks, Dr. Greensmith. I added my brief comment.
     
  3. jace

    jace Off the fence

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    England
    Resurrecting this thread to show you two videos that clearly show how the "results" of the PACE study were manipulated

    [video=vimeo;21852891]http://vimeo.com/21852891[/video]

    [video=vimeo;21850334]http://vimeo.com/21850334[/video]

    Quick, clear and painless (unlike GET and CBT)
     
  4. Bob

    Bob

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    England (south coast)
  5. liquid sky

    liquid sky Senior Member

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    Great videos. Thanks. I have been through GET and CBT at different times in my illness. Having others to talk to, making you feel like someone really gets it can be uplifting. It does not in any way improve the illness. Exercise can be very detrimental to PwME. Most pain management centers require some form of GET and CBT to continue receiving pain medications.

    It is amazing how people cannot understand an illness that they cannot see. I notice how people treat those with visible infirmities compared to those whose pain cannot be seen. Even physicians need a test or x-ray to believe that an illness is real. Hopefully, we will have that magic test soon.
     
  6. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Absurdium

    Hi, this is something I posted to an XMRV thread, but I thought a PACE thread could do with some humour.

    Exercise can cure ME/CFS. It doesn't matter how sick you are. Since exercise makes you sicker, every little bit will make you sicker faster. As you become totally disabled, just staying alive will be like infinite effort. If exercise can cure, then infinite effort will cure instantly. So the way to be cured is to exercise until you are totally incapacited.

    Disclaimer: Actual results may vary. The results claimed in this article are for hypothetical patients with a hypothetical diagnosis. Please do not try this at home. Please pay lots of money to one of our consultants.:innocent1:
     

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