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PACE media coverage - golden opportunity!

Discussion in 'Action Alerts and Advocacy' started by Sasha, Oct 29, 2015.

  1. Sasha

    Sasha Fine, thank you

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    The media coverage of the latest nonsense from the PACE trial authors means that the PACE trial is in the news.

    This is just in time to broadcast the new #MEAction petition to force the The Lancet and Psychological Medicine to retract their misleading claims of patients recovering during the trial, and to force the authors to publish the real results according to the originally planned recovery analyses, not the silly ones that replaced them.

    So! Please use the comments sections to post messages about the petition:

    http://my.meaction.net/petitions/pace-trial-needs-review-now

    It's not just a petition - though at this rate it's going to be news in and of itself - but it has background pages that explain simply and briefly exactly what went on with these misleading claims.

    It's dynamite, so let's get the story out!

    The petition is going gangbusters at over 1,800 signatures in the 13 hours since it was launched.

    Please spread the word any way you can.
     
    helen1, Sea, Scarecrow and 2 others like this.
  2. Sasha

    Sasha Fine, thank you

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  3. Scarecrow

    Scarecrow Annie Gsampel

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    I was going to post on the AfME forum but their site is down. Is there anyone of Fb that can add a comment there? And to MEA?

    http://www.actionforme.org.uk/

     
    Sasha likes this.
  4. Sasha

    Sasha Fine, thank you

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    Great idea - I'm not on FB either.

    Can anyone do this?
     
    Scarecrow likes this.
  5. mango

    mango Senior Member

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    i'm on FB but don't have enough brain today to write something. i'd be happy to post your comment under my name, though, if you have something i could copy?
     
    Sasha likes this.
  6. Sasha

    Sasha Fine, thank you

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    Thanks, @mango! How about this:

    Jen Brea's massively well-networked advocacy platform #MEAction launced a petition yesterday calling on The Lancet and Psychological Medicine to retract misleading claims that a substantial proportion of patients recovered in the PACE trial.

    The petition also calls for publication of the recovery analyses promised in the trial's protocol but that were replaced by bizarrely weak recovery criteria. Patients were considered to have recovered in terms of physical function if they were still as disabled as patient with congestive heart failure.

    The petition has had over 3,400 signatures in less than 24 hours.

    Sign the petition and spread the word!

    http://my.meaction.net/petitions/pace-trial-needs-review-now
     
    Valentijn likes this.
  7. mango

    mango Senior Member

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    @Sasha great, thanks! done :) both on MEA and AfME (using my alternative FB profile, not my main one...)
     
    Valentijn and Sasha like this.
  8. Sasha

    Sasha Fine, thank you

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    Thanks, @mango, that's brilliant.

    :thumbsup::thumbsup::thumbsup:
     
  9. mango

    mango Senior Member

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    no worries :) don't hesitate to ask again if you want something posted on FB some other time. i'm more than happy to help boost the volume on your messages..! you're doing an amazing job, and i really admire your way of writing/expressing these things, always so well-tailored and clear! i have soo much to learn from you :)
     
    Valentijn, helen1, SOC and 1 other person like this.
  10. Sasha

    Sasha Fine, thank you

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    Thank you! Very kind! :)
     
    mango likes this.

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