Dr. Bateman answers IOM questions from the community: Part 2
Clark Ellis brings us Part 2 of an interview with Dr. Lucinda Bateman, where she answered questions posed by the patient community …
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PACE baseline results at BACME conference?

Discussion in 'Latest ME/CFS Research' started by oceanblue, Oct 22, 2010.

  1. oceanblue

    oceanblue Senior Member

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    I'd thought that Peter White was presenting baseline results on the PACE trial to the BACME conference last week but haven't seen anything posted on this. Does anyone know if it happened and what was said? thanks
     
  2. Dolphin

    Dolphin Senior Member

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    I know somebody who was at it. PACE Trial results weren't given. Peter White summed up the conference and amongst other things said results would be out in the next few months.

    Also: http://www.bartscfsme.org/Documents/PROGRAMME 291110.pdf
    This was only announced in the last few weeks as far as I know so think he still expects results to be published soon.
     
  3. oceanblue

    oceanblue Senior Member

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    Thanks - I was only expecting baseline data eg demographics and maybe split between different case definitions, rather than the results of different therapies trialled but from what you say he didn't even give that. Thanks for the birthday party leaflet too
     
  4. Sasha

    Sasha Fine, thank you

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    Did they collect data to allow them to split patients into subgroups by case definition? I've been wondering why studies haven't done this as a matter of course, for years - research could have been a lot farther ahead if they had.

    Study protocols should include what analyses are planned, especially big, publicly funded ones like this - some study protocols are published and registered with clinical trials registries (partly so that researchers can't change their story later about what analyses they intended). I would think the PACE planned analyses would be on public record somewhere.
     
  5. Dolphin

    Dolphin Senior Member

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    The official protocol is up at: http://www.biomedcentral.com/1471-2377/7/6/
    They look like they will examine the effect of the CDC criteria and ME.
    There are a lot of comments at: http://www.biomedcentral.com/1471-2377/7/6/comments

    We generally didn't have protocols like this in the past.

    More background info can be got by downloading the info at:
    http://www.forums.aboutmecfs.org/sh...L-UK-CFS-ME-PACE-TRIAL-Manuals-are-NOW-ONLINE.
     

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