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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Oxygen and saline- for symptom relief to be added into the Primer for ME

Messages
51
Hi like many ME sufferers I am pleased with the IACFS/ME Primer it is a great step in the right direction. I was surprised however that the benefits of oxygen and IV saline which help many people with severe ME were not mentioned as treatment options.

I am bed-ridden with severe ME and find both oxygen and IV saline very helpful before them I could not talk/walk or concentrate at all. Now I am able to do a few wee things in my bed a little bit of typing etc..

Has oxygen and or saline helped you? Do you think these treatments should be added to the Primer?