I had another rather disappointing doctor appointment today... I've been through the ringer and have tried most things but my doctor said she is basically stumped and doesn't know what else to try. She said I'm the ONLY patient at their clinic who has failed to have some improvement by now (approaching two years). My CFS started around 2010 and I am 23 now.
Did one year of Valcyte for HHV-6, corrected deficiencies, supplements, LDN, etc. (too foggy to think right now). Today I:
- Tried a stronger dose of LDI for possible reactivated Lyme. (Did three shots prior, several months ago. I also did 3 months of abx to no effect.)
- Was recommended to get the 23andMe test. Is the $200 really worth it?
- My Pregnenolone was a little low so I'm going to start taking that.
- I am going to try Armour instead of straight T3.
- I asked about trying Mestinon but she has to look into it first since she's never prescribed it before.
My cortisol tested fine but I'm aware that blood tests are not reliable at all and it should be a saliva test. I forgot to mention this to her.
One more thing- my pulse and blood pressure have been very high the last couple visits. Also the last two visits I've had a low grade fever. (I have not had a cold or 'regular' sickness.) She advised me to see a PCP about this. What are the possible causes of this?
Did one year of Valcyte for HHV-6, corrected deficiencies, supplements, LDN, etc. (too foggy to think right now). Today I:
- Tried a stronger dose of LDI for possible reactivated Lyme. (Did three shots prior, several months ago. I also did 3 months of abx to no effect.)
- Was recommended to get the 23andMe test. Is the $200 really worth it?
- My Pregnenolone was a little low so I'm going to start taking that.
- I am going to try Armour instead of straight T3.
- I asked about trying Mestinon but she has to look into it first since she's never prescribed it before.
My cortisol tested fine but I'm aware that blood tests are not reliable at all and it should be a saliva test. I forgot to mention this to her.
One more thing- my pulse and blood pressure have been very high the last couple visits. Also the last two visits I've had a low grade fever. (I have not had a cold or 'regular' sickness.) She advised me to see a PCP about this. What are the possible causes of this?