1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The ePatient Revolution
Ryan Prior shares his experience and his thoughts from attending the Stanford Medicine X Conference as he contemplates the rising of the ePatient Revolution ...
Discuss the article on the Forums.

Out of illness, a vital creative life

Discussion in 'General ME/CFS Discussion' started by Ember, May 1, 2012.

  1. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,781
    Author Peter Hobbs relied on books, and friends, to sustain him for 10 years

    by Noah Richler on Friday, April 27, 2012

    http://www2.macleans.ca/2012/04/27/out-of-illness-a-vital-creative-life/

    Related articles:

    "Tried by a horrible disease, Peter Hobbs turns to writing:" http://www.theglobeandmail.com/news... RSS/Atom&utm_source=Home&utm_content=2415993.

    "Peter Hobbs arrived at one of this years best books the hard way:" http://blogs.montrealgazette.com/20...ed-at-one-this-years-best-books-the-hard-way/.
    Snow Leopard and CJB like this.
  2. justy

    justy Senior Member

    Messages:
    2,569
    Likes:
    2,562
    U.K
    His book sounds great - i/m going to put it on my list.

    Having M.E has also enabled me to embark on a creative life of writing. I am currently studying a creative writing course with the Open University (online) I am getting very good feedback from my tutor which is spurring me on to wan to write more. Before i was this ill i always spent my time doing crap jobs to make ends meet, but now i can follow my real dreams to write - or at least to see if i can.

    Now the main thing holding me back is this forum - far too much time spent browsing and chatting on here and not enough on actually getting down to writing!
    Justy.
  3. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,781
    I've ordered both In the Orchard, the Swallows and The Short Day Dying. Unfortunately the short stories volume, I Could Ride All Day in My Cool Blue Train, is out of print.

    Peter Hobbs' fiction isn't autobiographical, but it seems to be informed by his illness experience. Of his new novel he says, Obviously I used some of what I knew aboutundergoing drawn-out periods of isolation and suffering in order to imagine the life of the narrator.... Here are a couple of reviews of his earlier works:

    A voice crying in the wilderness
    Peter Hobbs's debut, The Short Day Dying, is a masterclass in less is more, says Kirsty Gunn
    The Observer, Sunday 13 March 2005
    http://www.guardian.co.uk/books/2005/mar/13/fiction.features1

    Variations on a theme
    The characters in Peter Hobbs's haunting collection of stories, I Could Ride All Day in My Cool Blue Train, are incapable of pleasure says Roy Robins
    The Observer, Sunday 19 March 2006
    http://www.guardian.co.uk/books/2006/mar/19/fiction.features1

    David Malone is right: Its very hard to make a living out of literary writing. Besides, I could do with the inspiration. Courageous Daffodil comments, "It's nice to see something with substance being marketed to booklovers, and this review has helped Mr. Hobbs and his book to stand out. His personal story is as inspiring as I'm sure his book will be."
  4. L'engle

    L'engle moderate ME

    Messages:
    952
    Likes:
    421
    Canada
    Don't worry, Justy, many authors write just 1-3 hours per day, with the other hours spent finding inspiration elsewhere. Writing is very intense and takes tons of energy, but doesn't need to take your whole day the way a job might. So keep coming to the forum as much as you like :D Certainly an inspiring place :)
    justy likes this.
  5. SickOfSickness

    SickOfSickness Senior Member

    Messages:
    1,845
    Likes:
    925
    US
    Thanks for posting this article. I am glad he is out about the illness.

    So great :)
    Ember likes this.
  6. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,781
    Perhaps you'll be moved to start a writers' corner.:sofa:
  7. justy

    justy Senior Member

    Messages:
    2,569
    Likes:
    2,562
    U.K
    Perhaps Ember - when i have a bit more energy!

    :D
    Ember likes this.
  8. free at last

    free at last Senior Member

    Messages:
    565
    Likes:
    97
    Good luck Justy, something positive out of the darkness is always a victory.

    Writing is something ive also been thinking about. With my Astronomy, i may have a small but interested audience. Its just been thoughts at this point. I also for a long time wanted to write about the journey we call illness. But maybe it would be too raw for many. As my thoughts always seem to lean towards the darkness. the sheer horror. of what life can surprisingly throw at us all.

    But maybe the hope and light that came back. balances those thoughts into a meaningful whole i dont know.

    Maybe in some ways i want to shake people. take them to that place that is never considered, realized, felt. Just because its poweful. Let them know that those that live in a world of safeness.It can be gone in a intstant.

    How lucky they really are. How perfect life is when you dont have a care. And how the little things that most take for granted can suddenly be bliss to a person thats seen the scarier side to life.

    standing on a beach, or in the sea. walking and talking in the sunshine with friends or loved ones. Not in pain or fear. but glad to be alive. Sitting in a resturant enjoying the meal and company. with no feelings of doom waiting just around the corner. A life before illness. But now more appreciative of those Small things so many take for granted. Being free in the world with sunshine.

    Because soon it will be back to hiding. and horrible thoughts of illness, fever. viruses. hospitals. lack of control, fear. sweating, nausea. dizzyness. A fear of winter illness.
    Waiting for the sunshine to return again Justy. So many are still there, for them there is no sunshine yet. And it may or may not come for them. My hope is for those to feel that sunshine again. Because i know they will appreciate it more than those that havent had to lose it. YET
  9. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,781
    Have you also added Love and Fatigue in America to your list, Justy? Roger King was teaching creative writing, literature and film when he was diagnosed with ME in 1991 (http://www.gazettenet.com/2012/05/11/leverett-author-describes-surprising-effects-of-illness).

See more popular forum discussions.

Share This Page