Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Our Voice, Our Message, Our Lives

Discussion in 'General ME/CFS News' started by usedtobeperkytina, Aug 2, 2010.

  1. usedtobeperkytina

    usedtobeperkytina Senior Member

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    PANDORA and other non-profit organizations have joined together with a Facebook Cause page for a public awareness campaign. This will be a direct to the public campaign of ads and PSAs.

    We are working now on the first ad. Some of this is strategy, so I can't tell what the topics or angle will be.

    I guess I can't comment on other people's PR now that I am involved. I have crossed the line.

    There are doers and there are complainers. I am now a doer. (Complainers are valuable too as they help doers to do better.)

    We have longed for someone to speak boldly in a public way about the situation that leaves us forgotten, ignored, and misunderstood. Now, it is finally happening.

    This is not about blame. This is about awareness of the circumstances and the effects they cause and what needs to be done to correct the situation.

    Go here to join and donate: http://www.causes.com/causes/511536?m=62132c92

    Tina
     
  2. Otis

    Otis SeƱor Mumbler

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    Thank you Tina. I'm happy you're involved! You know how PR works and do a great job of explaining it to the rest if us.
     
  3. Sasha

    Sasha Fine, thank you

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    I agree with Otis - I'm really glad you've taken this on, Tina, you clearly have the skills! Thank you!
     
  4. CBS

    CBS Senior Member

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    Hi Tina,

    Thank you for taking this on. I'm a bit of a Facebook novice. I have a page but ALL that it says it that I created it so that in a hundred years when archeologist are rummaging around trying to understand more about who we were, my existence will have at least been noted. That's it. Do I need a Facebook page to join the Public Awareness Campaign? If so, I have a little house cleaning to do!
     
  5. Dreambirdie

    Dreambirdie work in progress

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    Please consider using my video on CFS as a PSA--this is what I made it for.

    Doers doing for other doers to do more. :Retro tongue::Retro tongue::Retro tongue::Retro smile:
     
  6. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Thank you for your support. In just one day, we have over $300.

    If we keep up this momentum, in 30 days, we would have $9,000. Just think of the advertising we could do with that.

    I did do the math right, didn't I?

    Tina
     
  7. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Dream, please check your PMs.

    Tina
     

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