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Our actions in response to Imperial College XMRV work

Discussion in 'Action Alerts and Advocacy' started by shrewsbury, Jan 6, 2010.

  1. shrewsbury

    shrewsbury member

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    I'm feeling that we need to respond vigoorously to this "research" (although I'm anything but vigourous at the moment).

    My beginning thoughts are:

    1. I posted on the CAA page thanking Dr Vernon for her great and timely response to the Imperial paper, XMRV Negative Results Emphasize Need for Robust Replication StudyShare.

    I also asked what they are doing about getting it into the main stream media.

    2. To that end, I thought we could

    a) clobber together a draft or parts of a letter we can all send off to the BBC and any other media that published articles.
    BBC - you've been conned? Wessely and McClure put Careers on Line with Bad Science? ok ok silly again
    And also to media that didn't pick up the story originally. I'm sure they love a chance to bash the opposition! It really helps me when I'm tired to have most of it laid out for me. As gracenote always helpfully reminds us - one clear concise page is good.

    Talking points to be filled in:

    i) the CAA response of possible reasons for results

    ii) Science vs PLos ONE -
    most respected journal / unknown internet journal
    submit, most rejected / pay $1350
    Time from submission to accepted xxxxmonths / 3 days
    reviewed by xxxxxxxxxxxxx / plos info

    iii)credibility of study basically nothing. McClure's statements totally unwarranted, unsupported absurd claims

    iv) research to watch in future: joint study vernon refers to, WPI live-stream Mikovits Jan 22 10

    b) get a list of possible media addresses to email to (we should probably have one on hand anyways)

    c) I think maybe don't reply at all to this unknown pay-to-publish service as we don't want them getting any hits. IGNORE THEM.

    What do you think?
  2. gracenote

    gracenote All shall be well . . .

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    Santa Rosa, CA
    also posted on THE thread

    I'm thinking that Denise Grady from the New York Times needs all this great info that you all are uncovering ASAP. I'm off to bed, too. Just a thought for someone else to follow up on. :Retro smile:
  3. Katie

    Katie Guest

    I wrote this on the Fight is On thread, might be helpful.


  4. Min

    Min Senior Member

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    UK
    Imperial College - write to the media

    Here are the UK media articles about the Imperial College study results, with the addresses if you want to write to each paper etc concerned. A full postal address and telephone number must be supplied before publication is considered.

    The Daily Mail:

    letters@dailymail.co.uk

    article here:

    http://www.dailymail.co.uk/health/article-1240871/British-experts-dash-ME-breakthrough-hopes.html

    (on this page you will find a poll to vote whether M.E. is 'real' or not. It can be voted on more than once)


    The Independent:

    letters@independent.co.uk

    article here:

    http://www.independent.co.uk/news/s...und-the-cause-of-me-is-premature-1859003.html


    The Guardian:

    letters@guardian.co.uk

    article here:

    http://www.guardian.co.uk/lifeandstyle/2010/jan/06/chronic-fatigue-syndrome-xmrv-virus

    The BBC:

    Today (BBC Radio 4 morning news)
    today@bbc.co.uk

    &

    PM (BBC Radio 4 evening news)
    pm@bbc.co.uk

    other UK newspaper addresses for letters to editors are here:

    http://www.mediahell.org/letters.htm

    Many thanks to all outside the UK for your support.
  5. alice1

    alice1 Senior Member

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    Toronto
    Where do we sign!!
  6. _Kim_

    _Kim_ Guest

  7. alice1

    alice1 Senior Member

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    Toronto
    It's an exellent commentary..I can send some to the Canadian papers.

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