I have been re-reading Hillary Johnson's brilliant book, Osler's Web, again. In truth, when it first came out I was sick with severe CFIDS/FM for two years and could NOT read, write or understand what was being said to me. My husband read the book and gave me a summary and then I would pick at different parts of the book and try to read and understand. Well, NOW that I can read and have some understanding, especially given the newly discovered Retrovirus, I have gone back and really read Osler's Web. I am SHOCKED that nothing has changed since that book came out in 1996. The Retrovirus discussions date back to the 1980's, issues with the CDC people are still the same but names have changed, and NOTHING has moved forward vis-a-vis the CDC and CFIDS - NOTHING. I stronly urge everyone to get this book and read it. You will be upset and shocked that nothing has changed since the 1980's = nothing. They had ample evidence of a Retrovirus exploding cells and causing cancers way back then. I don't know if the XMRV of today and the Retrovirus of the 1980s (Defreitas and Cheney, et al) are the same OR we have more than one deadly, cancer-causing Retroviurs out there and CONTAGIOUS (in addition to the HIV Retrovirus). But, from my reading it really does appear that CFIDS is contagious and not just through blood or semen but airborne. When finally, the real truth comes out on what the CDC has been hiding from the American public on CFIDS and the Retrovirus(es) that the CDC has KNOWN about since the 1980s, there will be an uproar of epic proportions. I am NOT into the X-Files type conspiracy stuff, but there is no other explanations for all that has gone on for three decades with regards to CFIDS and the Retroviruses that the CDC knew damn well about and did nothing about. WHY keep us looking like nuts and not terribly sick people when the timeline was that CFIDS and AIDS were hitting the public at about the same time? WHY ignore CFIDS but throw billions of dollars at AIDS? Why? Better advocacy? Deaths from AIDS but slow, lingering deaths from CFIDS so it's not an "emergency"? The CDC, I propose, is hiding a terrible secret about CFIDS. It may well be they or another Federal agency engineered this Retrovirus(es) and it got out accidently or delibertly into the public and the CDC had to cover it up, with aid and assistance of NIH and other Fed health orgs. It's NOT just insurance money at stake, though that too plays into this. There must be other secrets that are being kept about CFIDS by the CDC/NIH. Sounds nutty - but not when you review the long history of CFIDS, the insane amount of work and research by the Gang (Cheney, Peterson, Defreitas, Bell, Klimas, others), and many other worldwide labs and doctors who, time and again, have proved the damage to our bodies and brains. So, bottom line: READ Osler's web - or re-read it. Next, email or write letters to Congress and those in charge of funding for NIH/CDC and those that can begin investigations into the CDC. Yes, this has already been done because of Ms. Johnson's book and the "cover his butt" Whistleblower William Reeves back in the 90's - but we have to scream more and louder about the CDC and the total lack of any forward movement on their part for CFIDS. Truthfully, I would just prefer to see the CDC cut out of any CFIDS work. However, some of the public and doctors still look to these fools for validation, education, etc. So they have to remain, sadly, in our game. But it is high time to get rid of Reeves, his associates, his contractors (who have made a ton of money since 1988 on CFIDS and nothing to show) or we will be in the same position as we were back in the 1980's. Rambling and Mad. Sorry. But I see no change to CFIDS and the CDC since the early 1980s. And the euphoria over the XMRV is sort of like the euphoria of the Defreitas/Cheney Retrovirus back in the mid/late-1980s (published in 1990). And as we now know, nothing came of that Retrovirus work either. I fear this newly discovered connection with CFIDS and XMRV will just be a sad repeat of the Defreitas Retrovirus all over again. My very terribly fear. Thoughts on the above rambling????