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Origin of XMRV and its Demise as a Human Pathogen Associated with CFS

Discussion in 'XMRV Research and Replication Studies' started by Jemal, Jul 28, 2011.

  1. Jemal

    Jemal Senior Member

    Sometimes you get a short period of global warming before another ice age. So we might still get both! :angel:
  2. currer

    currer Senior Member

    Hi, Ive just read this paper. It is very much "the official line". The Robert Koch Institute is the German equivalent of the CDC.
    Das ist nichts Neues!
    Dont worry about it.
  3. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Concord, NH
    So I guess we shouldn't waste money on trying to curb it then?

  4. redo

    redo Senior Member

    Hmmm. Do they know of something I don't know of? I have PM'ed, searched and went through ever corner of the www for such info, and I've come out with a handful. A one digit number of patients.

    I think the reason they are frightened that this tiny group does something new, is the same as I mentioned in the other thread: In the treatment of CFS, when a doc does a risk calculation, they compare the situation where everything is hunka-dory fine with this new and unknown path. And the answer of what they'll do gives itself.

    If you're at the end of your rope, they give you no other option than tying the rope around your neck, and jumping from a chair. What I mean is that you're perfectly welcome to order an appointment at a euthanasia clinic. That's fine, go ahead. The medical team will assist you.

    But the medical world wont allow you to take a long shot, and try a treatment, because they argue - well, eehhhh - it's a long shot (as if we don't know that). Nothing has pissed me off more in the course of my disease than that attitude. It's my body, but I have to leave it over to a doc who couldn't care less.

    ARVs are just one thing. If I'd like to try other treatments, they are often denied by the doctor on the basis that there are no guarantee it'll work (who doesn't know that). And of course - everyone knows that it might even backfire. People are perfectly aware. But they never seem to care if a well informed suffering patient is more than willing to take a long shot to try to get out of this living **** (fill in blank). For some reason that doesn't matter.
  5. drewmaster


    Agree with your last post, Redo. This is why doctors like Enlander are particularly exceptional and wonderful; in the 13 years I've known him, he has never refused to consider a treatment that could potentially be helpful.

  6. santi


    Seen here: http://www.virology.ws/2011/05/31/xmrv-is-a-recombinant-virus-from-mice/

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