1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Organic Research Database?

Discussion in 'Other Health News and Research' started by Marco, Jan 12, 2010.

  1. Marco

    Marco Old blackguard

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    Near Cognac, France
    In the early days (80s, early 90s) I had a few books on ME which always mentioned findings of physical damage or proposed viral/bacterial etiology. Having gone through all the suggested therapies, supplements etc I gave up researching the illness for a long time. However, since joining this forum I'm pretty overwhelmed by the number of apparently robust findings that support the organic model.

    Yet I also constantly see statements on websites that should know (UK NHS, BUPA, BBC etc etc) that the cause of ME is unkown (OK!) and that there is no evidence of physical illness?

    Is anyone aware of a list - or even better a database - of all the findings to date of a proposed organic cause or evidence of organic pathology?

    I can visualise a relational database with fields including title, authors, authors' speciality, abstract, on- line link to full paper, perhaps categorised by symptom studied or type of causal agent studied, citations, refutations, maybe even some assessment of the 'value' of the study based on the usual parameters.

    Sounds like a lot of work (unless it has already been done) but what a resource that would be to educate the medical profession and counter the psych lobby, plus allow ME researchers to keep in touch and link up with others!
     
  2. Marco

    Marco Old blackguard

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  3. Dr. Yes

    Dr. Yes Shame on You

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    Thanks for the link, Marco! Great stuff.. I haven't seen many of these articles. I agree with you that there is a great need for the type of 'database' or 'list' you mentioned. Maybe Co-Cure's research archives are the closest thing.. but they're not indexed and compiled in quite the same way.

    A summary by Prof. Hooper that may be very useful is mentioned in the article you linked to; unfortunately most of us only have access to the abstract...

    "Excellent regularly updated peer-reviewed overview paper - see:
    Myalgic encephalomyelitis: a review with emphasis on key findings in biomedical research.
    Professor M Hooper. J Clin Pathol 2007; 60:466471. Doi: 10.1136/jcp.2006.042408."
    http://jcp.bmj.com/cgi/content/abstract/60/5/466

    If anyone has university, etc library priveleges and can get the full paper, it would be much appreciated!! :D
     
  4. Marco

    Marco Old blackguard

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    Hi Dr.

    Good isn't it! I just found the site this morning while trying to answer my own question by doing a google search on 'myalgic organic research'.

    I'm surprised I haven't come across this site before. Seriously good stuff for what appears to be a small regional site (if thats not too patronising).
     
  5. Lily

    Lily *Believe*

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    It's still kinda early out here in the west, but hopefully our dear Gracenote will be able to access this for us. (hint hint - oh I guess that was a little more than a hint:ashamed:)
     
  6. Dr. Yes

    Dr. Yes Shame on You

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    :worried: Lily?? What have you done with Linda and loldershaw??
     
  7. _Kim_

    _Kim_ Guest

    According to my University library, I should have access, but don't. It looks like some of the archives on this journal are missing. They go up to v.60 (1) 1-112 Jan 2007, then nothing else is archived until v(61) in 2008.

    I did find that BMJ printed a correction...what a tease:

     
  8. Dr. Yes

    Dr. Yes Shame on You

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    Yes, and for only $30 we can read the rest of the 'correction'! :rolleyes:
     

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