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No Longer Naive in the Ways of The Beast
After having lived for years with ME/CFS, Jody Smith learned there's more to this beast of an illness than she realized, and that what might help one person may not help others ...
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Optimum Health Clinic - anyone used or have an opinion?

Discussion in 'ME/CFS Doctors' started by Lae, Jun 11, 2012.

  1. sianrecovery

    sianrecovery Senior Member

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    Manchester UK
    Lae - I was diagnosed with CFS in an NHS CFS clinic. It was the only terminology they would consider valid. Since then, I have been diagnosed with ME, by doctors who specialise in ME - but also protomyxzoa, blastocytosis, KPU, genetic defects around methylation and processing biotoxins, and sundry other conditions. ~I had a genetic kidney disorder to start with, and had also had Hep C. The more you investigate, the more you find. My point in listing all that stuff is that ultimately the names are only important in that they can point you in the right direction. Dont get hung up on them. Dont fret about doing it right - because one persons right is anothers wrong - anxiety about what to do next is a primary feature exacerbating many people's ME, because they constantly feel gnawing anxiety, and that does no ones brain chemistry any good. Trust yourself, trust your instincts - and dont worry about the label.
    Lae and justy like this.
  2. sianrecovery

    sianrecovery Senior Member

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    sorry Anniekim, I'm not sure, will try and find out
    Lae and anniekim like this.
  3. Gavman

    Gavman Senior Member

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    Sydney
    Hi Lae,

    I'm going to pitch in because i've studied NLP and want to talk about it. NLP is a grouping of psychological tools and very practical based. It seems like CBT is the only evidence-based proven therapy. So if you want to go down that route, you have one option for therapy. If someone has a problem, the good part about NLP is its adaptive, it can shrink the problem down or deal with it on many levels. Three important factors for therapy are: The clients willingness to engage/deal with problems, is the therapy right for that person and is the practitioner the right person for that client.

    The idea behind psychology being able to benefit CFS is that, we do create problems and difficulties in our life from our belief and value systems. Claiming this IS the cause of CFS is ludicrous, however, as we deal with and process our issues that go against our health and values, it makes it so much easier to deal with life and get the right help.

    Eg. A causal belief for CFS is, I'll never be good enough. If a body can't deal with an illness because they don't ready their bodies natural defences, they arent good enough to deal with it - then of course this could be a major impediment in healing.

    NLP is a collection of tools that are used for a specific problem. If someone has an issue that won't respond to a specific form of therapy, there are other ways to tackle the problem. I'd hardly say its discredited, There are a lot of very succesful, health/wealth wise people who use NLP to help process life.

    The dodginess to me is the fact that the clinic comes across as a business first. Whether or not those people are effective is a different story.
    Lae likes this.
  4. Lae

    Lae

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    I just wanted to say that as a result of this forum I have ordered the Mitochondrial Function Profile from Dy MyHill, and had the blood taken today (oh my word that was a lot of blood for someone who detests needles!). I had a period of feeling really really unwell so took a while to get it all sorted, but in a way I wish I had got the test done in a really bad patch so I can work from the bottom upwards.

    Anyway, just wanted to report back and to say thankyou :)
    SOC likes this.
  5. sianrecovery

    sianrecovery Senior Member

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    Manchester UK
    dont worry about not feeling at your worst - I think that test should pick up whats there either way. Some peeps dont like it as a test, I found it very helpful

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